Good Morning folks, thanks for your concern. . It's fair to say I've been under the cosh again recently. . I won't dwell on it all because I'm going forward now not back. So I will tell what going forward means in real terms.
I'm seeing an eye specialist who specialises in Graft Versus Host Disease GVHD. She is one of the best so I'm lucky there. Likely due have tear ducts cauterised as tiny silicone grommets keep coming out. Just got immuno-suppressant drops on 3 month trial which so far ive tolerated. 'See' how they go.
I'mve been accepted for Electric Corporeal Treatment ECP for another 3 months which I'm very pleased about. This is where they take sufficient blood spin off my white cells and expose to UV Light before pumping them all back in me again. Hard to measure results.
I'm taking just over 700 tablets a month which I'm not pleased about but my Steroid is now very low dose so hoping side effects will diminish as a result.
Still shooting 69 units insulin daily but managing sugars to allow a few treats.
My back is still damaged with compression fractures on several vertebrae , , steroid related. The local Hospice pain management nurse has been and I have a 7 day low dose slow release morphine patch which I think is helping. But I've shed many tears with the pain which is indescribable and wears one down 24/7 so hats off to the Hospice.. I'm hoping to back walking again in next few days as pain has eased considerably.
I bought a new to me rise recliner electric chair and dropped lucky as like new at fraction of cost.
I have a electrical hospital type bed in living room which I'm going to try sleep in soon now back pain eased.
And finally I built a new Light Sabre as my old one lost its glow and I need a bright energy to take me forward.
My ever caring hard pressed wife conines to be my rock and truly is an Angel.
As the late great Dave Allen used to say "May your God go with you"
Sorry any typos my eyes poor. Chris xx