Feeling worried

[catwomen2015]

Hi i just had an interim blood test fbc and renal tests and my platelets creeping back up and my MCV high 99.1 im very upset and worried , i left message at hospital for my consulttant to ring me ( this blood test was done through gp) seems we get on okay for few weeks then bang more to worry about regards Holly

[Superwoman]

Hi Holly sorry to hear this, could your GP not get in touch with your consultant, he or she must know how worried you are, not nice to say the least, and just to leave you to sort out yourself is not fair.

Chin up Holly, thinking of you let us know how you get on.

Jean x

[catwomen2015 in reply to Superwoman]

Hi jean, i rang hospital and spoke to consultant sec and shes going to tell him , he busy in clinic but i shoukd get a call in morn if not today , i know Hu can cause a rise in mcv ( i looked it up) thank you jean for replying xx

[mhos61]

Hi Holly, you say your platelets are 'creeping up.' By how much have they increased and are they still within healthy range? It maybe just a matter of titrating the dose of Hyderea. Your MCV is still within the range and your right, it can increase with Hyderea; mine has. I'm not too concerned at this stage, it will be interesting to hear what your haematologist says. Try not to worry.

Mary x

[catwomen2015]

Hi Mary yea platelets within range ,i read on a fb mpn forum , thats those that had high HCV were taken off HU and moved to interferon ,or pegasy ! also can be caused by Low B12 in body , i must admit i havent felt that great since he raised my HU to every day last blood test showed slight blood infection , and i have upset tum every few weeks also best wishes Holly x

[Mazcd Partner MPNVoice]

Hi Holly, what a nuisance our MPNs are and the medications, let's hope you get this sorted out and start to feel better, sending you hugs Maz x

[catwomen2015]

Bless you Mazcd, thank you ,we all go through these times i know its almost like 2 steps forward and 5 back eh ! but im trying to buck myself up and not feel sorry for myself ,people go through worst senarios ,hope your keeping well regards Holly x

[Aime]

Hi Holly, I know it's that blooming merry-go-round we are all on that we keep thinking we are getting off then something else pops up! The others are better advising you as I'm not on meds and have PV but I just wanted to send you a load of E hugs and insist on an answer tomorrow at the latest. The other replies you've had have been reassuring. Kindest regards and lots of hugs Aime xx😺😺

[catwomen2015]

Aime , thank you ,your very kind . yes i heard from hospital this afternoon , but hadnt had chance to post on here , he said the platelets will fluctulate and he okay with reading , also yes my MCV is on high side but it coukd be due to Hydroxycarbmide ,but to carry on as usual till i see him in April so yes have accepted what he said and hope next blood test better . best wishes Holly xx

so

[mhos61]

Glad you're happy with the outcome Holly. I will enquire on my next visit in May as well...my MCV is 103.

Mary x

[catwomen2015]

Hi Mary , i will ask more questions about MCV when i see him next and what if any symptoms will this cause to our bodies long term ! Im aware being on HU can have an affect on other organs / blood cells etc so yes im still not that at ease with things keep well Mary Holly x