I've seen the haematologist today, managed to get an appointment a week early after I phoned the specialist nurse and told her about my messy toes and that the dermatologist said I needed to come off the Hydroxycarbamide.
I had to have an ECG as apparently Anagrelide will probably give me palpitations at first! 😳
Anyway my platelets were down to 405 - almost normal. The dermatologist had written to the haematologist and said the problems with my foot were entirely drug related. (Why do they have to write to someone who is only down the corridor- why not emai?) So I have now been prescribed Anagrelide. A bit cautious about taking it as I was told I'll probably get palpitations to start with. I go back in two weeks.
So fingers crossed it suits me and my foot starts to get better as I don't want to wear my old sandals forever - particularly in winter.
Does anyone know if the extremely painful peripheral neuropathy will clear up or have I got that long term? (I'm taking Amitriptyline for it)