Hydrea

[spikesnana]

Just increased my dose of Hydrea to 1500 mg per day. Been feeling like I have the flu and experiencing pain in my lower stomach/ pelvic area. Have PV diagosed 4 years ago. Can't get out of bed or eat anything. Anyone else have this.

[Inca]

Hi Spikes Nana , Was increased to the same as you a month ago,I feel dreadful,yes flu like ,tum ache ,back ache ,all wrong and desperately weary,struggling to keep awake. I am P V too,blood test tomorrow,hope blood is better and can reduce dose,you are not alone,best wishes that you feel better soon.Very depressing isn't it .

[spikesnana in reply to Inca]

Yes I hate feeling like this. Thanks for sharing

[forwardocho]

Hello

I have ET and have been on 1500mgs of HU daily pretty much since diagnosis, it's increased to 2000mgs at weekends. I have not experienced any flu symptoms. I do however get very sore shoulder muscles and aching joints and I take Glucosamin for this. It may be your body getting used to the extra dose. I do drink gallons of coconut water which I find helps a lot, or normal water if you don't like the former.

[Susangl]

I was like that 12 months ago when they raise mine to 3 a day, l was in bed for 7weeks feeling terrible. Once my body got used to it l started to feel better. Before Christmas l started feeling unwell again, And my New Consultant put me on Folic Acid for a month, it is working for me.hope you are feeling better soon. I definitely know how you feel

[spikesnana]

Thank you for all your comments. Went to the Dr and found out I have diverticulitis. Very painful. Now on 2 different antibiotics. Have stopped my Hydrea for a week. Too many pills. My stomach can't handle it. Never know when your sick when you have PV.

[JuneKnox]

Yes - it's difficult when you have lots of different conditions. Hope you find some relief now. Big hugs.

[spikesnana]

Had my blood work done today and in 4 years never normal. I had stopped my Hydrea and had to take 2 different antibiotics for the diverticulitis I developed and now all blood levels normal????. Had anyone else had this happen. Did the antibiotics do this. I'm puzzled.