Newcastle meeting Today yippee

[Phelpsy]

At work early today , then off to See my favourite lady today Maz xx

[Mazcd Partner MPNVoice]

Pam, bless you, I am so looking forward to meeting you at last, see you later. Maz xx

[Phelpsy in reply to Mazcd]

Was lovely to meet you at long last Maz x

Thank you and all who made it such a brilliant meeting x

My hubby really enjoyed it to x

[Kizzy03]

I'm going today too from Edinburgh it will be lovely to meet everyone x X

Kizzy x

[Phelpsy in reply to Kizzy03]

Are that's great , hope we are able to have a chat x

[Inca in reply to Phelpsy]

Let me know what is said Pam,wish I could be there....had to post pone U K now.xxx

[Phelpsy in reply to Inca]

Sally you take it easy

Glad my letter picked you up ❤️

[Mardigras]

Have to take the grandsons to their footie match this morning, hope to catch the meeting online as I won't be back in the UK til 5th Nov.

Wish I could be there.

Hugs,

Marcia

[Sand-Dancer]

So wish I could be there today but suppose I will just have to endure some more sunshine 😃☀️ We will meet up one day 😃

[Phelpsy in reply to Sand-Dancer]

Would been nice to see you x

[Phelpsy]

Hi everyone

My husband came with me to the meeting as I'm not the best for remembering stuff ,

We were very impressed with everything that was discussed from all the wonderful consultants, specialist nurses Patient speekers & ok course are MPN voice team , ( thank you )

They covered amazingly cell change & the cell gets shorter & shorter & splits

And new meds that are hopefully coming out soon to stop the cells producing jak2 (inhibitors, )

all very interesting stuff ,

Fatigue, Pain , related to MPNers

I could go on on on ,

We branched of into groups and I found this very helpful, my hubby was in the family group ( he left me 😱) I was in ET group , we discussed not getting the information we need when diagnosed ,

Support if we need to reduce working hours , or having to leave work

general feelings about the disease,

And a delicious buffet & drinks x

All in all a good meeting x

Thanks to all who made this possible 🙏

Love Pam , xx

[conno61 in reply to Phelpsy]

Good stuff 👍

I'm gutted I had to miss the Llandudno one but I will attend one in the future.

[Mazcd Partner MPNVoice]

Hi, thank you to everyone who came along to the forum, it was great to meet new people, especially Pam and her lovely husband and to see familiar faces. It was a great forum, we are sorry that we had to change rooms at the last minute, but we would have been very squashed in the original room even though they said it holds 85 people, we would have been touching knees! Hope to see you all again either next year in Newcastle or somewhere else around the country. Maz

[Phelpsy]

Awwwww Maz it was great to see you

Steve learnt a great deal, Just talking & hearing other people are also sharing this condition really brought it home ,

He's more understanding now ,

We iare looking forward to the next one x

( Steve didn't even notice the photo of me on the projector for my cup cakes coffee morning ) !!!!!! Really ...

Thanks to everyone involved

We learnt a lot from 0ne visit x

Love Pam x