I have to say I'm so glad I found this list. I don't feel so alone now. I am in the US California. I have ET with JAK2 positive since about 2005, daily aspirin at 81 mg and I resisted the Hydroxyurea until Jan of this year as my platelets jumped into 900 range. I am now on 3 of the 500 mg per week and platelets had come down to 615. Slow but steady. Side effects not too bad, for me it seemed to make me hungrier and I gained a few pounds which I didn't like. More inflammatory reactions too as my system feels very acidic. Last week I delevelopd a canker sore under my tongue with burning mouth and slight white coating which they say is a little yeast due to the drug lowering my immune system.
Now they're giving me a choice of Nystatin swish and swallow which has sugar or Chlortrimazole lozenges. I hate taking even more drugs and wonder if anyone has experienced this and what they did? Are alternative treatments effective?
Thanks for being here