I had another appointment yesterday which fell at rather good timing as some of my symptoms were returning, mostly fatigue. Platelet count only at 460 but was down to 230 on Anagrelide. So it's doubled in during the month of not being on Anagrelide. The first 3 weeks I felt amazing but have been down hill since then, just when you think its over!
My first thought is whether fatigue and other ET symptoms can present themselves even when platelets are at relatively low levels? A question I didn't think of during the appointment.
Dr Sam, part of Prof Harrison's team brought up the possibility of interferon. I said no, for the time being, as I still hope to manage on aspirin but based on my struggles today it looks like trying a new treatment is needed.
I'm sure there are other discussions on here (I will have a search now) but I was wondering what sort of experiences you have had with interferon?
Is it interferon-alpha2b? - This is what google seems to think!
Hope you're all well.