Neprinol AFD

[130396]

Has anyone heard of this product? The information sounds like it can help with ET.

I read about this on the Facebook Essential Thromocytosotis group.

A lady has written how taking this for 2 months and her platelets have been the lowest in 10 years. At the highest they were 601...,, now 370.

She's 60 and is on 75mg aspirin only.

It had reduced her platelets and inflammation.

So did getrting rid of her inflammation lower the platelets????

Or did the platelets lower because of the Neprinol? She's also JAK 2+

[Mazcd Partner MPNVoice]

Hello, before taking any products of this type you must check with your haematologist that it is safe to take with your other medication and also discuss whether or not the product would have any effect on your platelet. I have just read on the product information for Neprinol and it does have a warning message : Warning: Do not take Neprinol without the consent of your physician if you are taking anti-coagulants or if you are pregnant or nursing. If you are taking blood-thinning medication, you should consult with your physician before taking Neprinol.

Maz

[130396 in reply to Mazcd]

Hi Maz

Thank you. I read that too but I am confused as I read aspirin is an anti platelet and not an anticoagulant.

I have appointment with haemo in June so I'll ask him then.

I really need to bring this inflammation down. It's like a catch 22.

Inflammation causes platelets to go up. So they use HU to bring platelets down.

My thinking is bring inflammation down and see where the platelets ate.

I need to get inflammation down in order to get my thyroid meds to work properly.

I found this Neprinol on the Facebook Essential Thromocytemia group.

Best wishes

Rose

[Mazcd Partner MPNVoice in reply to 130396]

Hi Rose, yes aspirin is an anti-platelet, not anti-coagulant, you are correct, I copied the warning on to alert other people reading your post if they are on any anti-coagulants, sorry, I confused you. Maz

[130396 in reply to Mazcd]

Hi Maz

That's OK I thought I might have been wrong.

Good idea to have the warning put on the reply. Best to be on the safe side.

Many thanks

Rose