Belfast: Hi Maz Just a short message to thank you... - MPN Voice

MPN Voice

10,407 members14,354 posts

Belfast

Margo18 profile image
2 Replies

Hi Maz

Just a short message to thank you for an excellent forum in Belfast yesterday. All the speakers were so good at getting a serious message across in a way which was easy to understand and as lightly as possible in the circumstances. MPN Voice is to be congratulated for bringing these meeting to us all across the country. It is really valuable to have the opportunity to hear the latest developments first hand and also meet others  and realise we are not alone

A big thank you to all concerned

Margaret

Written by
Margo18 profile image
Margo18
To view profiles and participate in discussions please or .
2 Replies
Mazcd profile image
MazcdPartnerMPNVoice

Hello Margaret

Thank you so much for this lovely message, we all thought it went really well and to hear you say it just makes it all worthwhile.  Our aim in running the forums is to do exactly as you say, it gives people the opportunity to find out what the medical professionals are doing for us and for people to meet others with MPNs, it can feel very isolating and lonely living with a rare condition and seeing and talking to other people is so helpful.  We hope to come back to Belfast next year.

Thank you so much for coming along and supporting us.  Best wishes, Maz.

Hobnobbing profile image
Hobnobbing

Missed it! Agh! 

You may also like...

MPN Voice Patients’ Forum - Belfast

Stranmillis Road, Belfast, BT9 5EE This forum is free to attend, you are welcome to bring your...

Carri Duncan - Author who had PV

Evening all, I stumbled across an article which led me to message this lady and I was wondering if...

Oxford Forum: I won’t be doing the patient experience talk

formal sessions to catch up. Thank you all for your encouraging messages. All the best Rachel(...

UPDATE: Would You Like to Have a Patient Led MPN Support Group in Devon and Cornwall?

agreed to post a message here to gauge what interest there might be among MPN Voice members for a...

What a great London forum

lovely to meet so many lovely people and say hello to a few was great to meet maz and thank you maz...