I had my regular 8 weekly blood check today and all the results came back fine, Hb and Hct within 'normal' range. Which is excellent news for me as after Octobers venesection I felt like cr@p for 14 days as my BP had fallen dramatically (this didn't happen while I was in Day Case, but after I had arrived home) So no fault of the hospital.
I was dreading having to have a venesection today due to the not so good reaction in October... but honestly thought I would need one as my symptoms have been really bad for many weeks, causing loss of sleep. Chronic Itching, Acid Reflux, Bleeding gums, fatigue and unexplained bruising ~ I haven't had a full nights sleep in nearly a month and have felt totally wiped out.
I didn't see my Haematologist today as it was just a 'regular' blood check, so the specialist nurse I saw advised that I see my GP and ask for referral to Gastro and has brought my appointment to see my haematologist forward by one month.... January instead of February.
When I arrived home after the appointment I was pleased and relieved.... YAY!!! no venesection.
Now after it's too late to ask I'm beginning to think WHY another referral?....
I've had acid reflux for years..... way before my PRV diagnosis, and also had a stroke in 2012 before PRV diagnosis.
I know for definite that I am Jak2 positive and I had a stroke in 2012. I don't smoke, drink alcohol or only occasionally, weight within 'normal' range, walk every day as I don't drive, eat my 5 or 10 a day. And even though I am self employed I still try to de-stress everyday, and my teeth and gums are fine as I had a dental check last month (no treatment required)
So....Why do they recommend Gastro and why bring my appointment with my Haematologist forward? When my FBC was within 'normal' range.
My PRV is currently managed by Aspirin and Venesection, other than that I take Verapamil for SVT (supraventricular tachycardia) diagnosed before PRV and Lansoprazole for the reflux. I've had so many investigations I'm wondering what more they can investigate... needles, cameras (in, down and up), MRI tubes x 3, bloods every month. :/ My head is now just thinking 'Gastro??' What next...??
At the same time I'm also relieved and pleased that further investigations have been called for, hence the confused.com heading.
Worry wart me....