Old Gent!

[cs1941]

I am 79 years old and was diagnosed with PRV and tested positive with JAK2. 59% in May 2016.I had 10 sessions of VENESECTION

and since July 2016 have been on Hydroxycarbamide. ,currently taking 11 no. 500mg capsules a week(have been for last 3 years.)

I have been taking various drugs to raised blood pressure for over 40 years

[mhos61]

Hi cs1941.

Welcome to the forum.

We have something in common. I was diagnosed in May 2016 too, and also on hydroxycarbamide. It suits me very well and keeps my platelets in check.

Good luck

Mary

[Mazcd Partner MPNVoice]

hello cs1941 and welcome to our forum. I do hope that being part of this community will benefit you. And I hope that you are coping well with your PV and hydroxycarbamide. Best wishes, Maz

[hunter5582]

Welcome to the forum. Glad you found your way here.

[Mostew]

Welcome. Hope you will find this forum a great comfort and support

[Cja1956]

Hello, and welcome! You will find much support on this site. Good luck going forward.

[Lifam]

Welcome! I've learnt a lot from this group, everybody is friendly and helpful and very supportive. Best wishes.

[Meatloaf9]

Welcome to this forum. Wishing you continued health and success with your treatments. Was that 59% back in 2016 your Hct or your allele burden for the Jak 2? Nice to hear from someone else in the over 70 group on this site although I wish you did not have one of these diseases. Good luck on your journey.

[cs1941 in reply to Meatloaf9]

Jak2 V617F. 59%

[Meatloaf9 in reply to cs1941]

Thanks for the reply. Just had mine checked and it went from 27% to 50% in three years.

[hunter5582 in reply to Meatloaf9]

Not sure what treatment regimen you are on. That sounds like a good case to be made for PEGylated Interferon as it is the med that seems to offer the opportunity to alter mutant allele burden. Hope you are doing well overall.

[Wyebird]

Welcome ! X