Hello everyone. I've been reading posts about putting on weight and fatigues with hydroxycarbemide and I just wanted to tell you what's happening to me since going on to the drug. Once I'd got my head round it, which took a week, I decided to see what research there was about diet for this condition... And there's nothing! The only advice is to eat healthily and be active. So having researched what that could mean, I decided to cut out sugar - in particular fructose - as it turns to fat and sticks around internal organs and blood more easily.
It takes a bit of working out what's OK to eat with natural sugars containing lots of fructose so I've cut out honey, table sugar, fruit juices, maple syrups and the like. I use lots of coconut oil, malt rice syrup and courgette, carrots and sweet potato in baking instead of sugar. And I only eat 2 pieces of fruit a day, which is the hardest thing!
I also have cut out processed food - not that I really ate that much but I was surprised how much sugar is in all sorts of things! Cereals, honey, dark chocolate, fruit juices, sometimes when i add it up now i was probably eating about 30 teaspoons of sugar In things i thought were good for me! And I don't buy ANYTHING that says low fat on it unless it's naturally low fat
The upshot is I feel more energetic than I have for years, which given ET and hydroxy is pretty good! I've lost a stone in 8 weeks without even trying and my skin, hair and eyes are brighter than ever! It hasn't had any impact on platelet levels, but thats not surprising necessarily, I'm doing it more for better general health than to expect it to 'cure' this condition.
Sarah Wilson writes a lot about the impact of sugar - there's nothing specifically about our conditions of course, but lots on the impact in general health and she has some good cookbooks out there too. but anything that builds my energy levels is good!
I don't want to sound like some evangelist but I can't tell you how much better I feel! happy to chat to anyone who wants to know more.
Enjoy the rest of the weekend - it's lovely and sunny in the Midlands today!