Sugar and alcohol…?

[Pachena]

Just wondering if it’s best to cut them from the diet or does it really matter? Do they make any difference to people with MPN’s.

We are overseas and I am only on aspirin. when we return the haematologist will begin me on Pegasus. I asked a friend who is a doc here if he would give me a pathology script to see how my bloods were going. The numbers had returned to the # when I was first diagnosed. He suggested I send the information to my doc and haematologist back home. I did and didn’t get a reply from either of them, so I’m guessing it’s not a problem.

My doctor friend said that he advises all his cancer patients to completely remove sugar from their diets as it causes cancer cells to multiply. I was wondering if it did this with MPN’s as it’s a diff type of cancer/disorder 🤔

Also the doc said that on looking into it as it’s not his area of expertise…. that red wine is good for lowering platelets 🤩🤗 I’m not a drinker really and have a glass socially now and then. Has anyone heard that this may be so with red wine?

Thank you 😃

[Mostew]

Following an anti inflammatory diet is recommended. Very little sugar an alcohol. Yes a good red wine is thought to be 'medicinal ' only a small glass though!! I havnt found it lowers platelets but certainly doesn't do any harm

Hope you get on with pegasis

[Pachena in reply to Mostew]

Thank you, Mostew 🌼

When we return home, I think I’ll look into getting the guidance of a professional to help me follow an anti inflammatory diet.

Our lives are so full I often feel 😵‍💫🙈

Thank you for your help x

[Mostew in reply to Pachena]

Have a look at Mediterranean diet meanwhile. Lots of fresh simple foods ,

There is lots of info on internet and MPN Voice have brought out a cookbook you may find helpful.

[Pachena in reply to Mostew]

Thank you x I didn’t know that 😃

I listened to a video of one of the female professors of MPN. I don’t recall her name and she said no red meat, limit animal products, more plant based meals, good oils etc. So that sounds like the Mediterranean diet I think.

Thank you for your help, Mostew 👏🏻🌼

[Mostew in reply to Pachena]

Go easy on fruit apart from berries and watermelon .

[Pachena in reply to Mostew]

Oh really, is that because of the sugar content? I thought watermelon was high in sugar.

I couldn’t work out how to search in MPN Voice. I see a search for health unlocked but not MPN Voice for the cookbook 🤔

[Mostew in reply to Pachena]

Yes the high in sugar. But Watermelon mainly water

A specific combination of antioxidants, lycopene and vitamin C, found in watermelon can lower inflammation and oxidative damage over time, Derocha explains. Inflammation can cause swelling, pain, or flushed skin for those experiencing it. And chronic inflammation can lead to serious conditions, including cancer, asthma, heart disease, and type 2 diabetes.

ask Maz about cookbook

DeKa makes a good point about alcohol., apologies. I agree it’s best to ask your consultant for in case you are at risk of liver problems. Red grape juice without sugar would be good .

I never have more than two very small glasses…

[Spanelmad in reply to Pachena]

Cookbook is on Amazon ordered last week

[DeKa]

Mediterranean diet and anti-inflammatory diet is the best. MPN Voice wrote a lovely cook book. I don’t recommend alcohol (I’m not a doctor), unless your MPN specialist approves and your liver function is consistently excellent (and hepatologist approves) ie no portal vein or splenic vein thrombosis (rare but possible clotting issues around the liver). I wouldn’t endorse any alcohol without discussion with your team. Everyone is different. Good luck!!

[cata]

Hi , I m sure both aren’t healthy but I m using both , avoiding coca col etc. and sweets sometimes, regarding alcohol I try to drink plenty of water , I’m also not a realy drinker ,I’m on Besremi having PV . Regards , Cata

[Mazcd Partner MPNVoice]

Hi Pachena

Best to get advice from your own haematologist about diet. You can buy a copy of the MPN Voice recipe book from Amazon amazon.co.uk/dp/B0BHLCJC51/...

Best wishes Maz

[ainslie]

cutting sugar is always a good idea, if your doc is suggesting drinking wine is a good idea to lower platelets then you need a new doc.

[Mostew in reply to ainslie]

I guess if you have an addictive personality recommending wine is a bad idea! But limited to litteraly 2 very small glasses is a real treat and not unhealthy. Same with good organic coffee.

[ainslie in reply to Mostew]

whether 2 small glasses wine is a good idea or not (daily or weekly?) is not the point , the doc said it would lower platelets , it doesnt , thats the point

[Mostew in reply to ainslie]

Oh ,see what you mean. Of course it doesnt

[Mostew in reply to ainslie]

I tried plenty of natural things that are supposed to lower platelets.

[SuET2017]

I cut out sugar about 2 years ago, and it made a huge difference to fatigue, which I think would be the case with or without an MPN, but as fatigue can be an issue for those with MPNs (I have a piece of 75-95% when I have chocolate cravings). I also follow a, mostly, anti inflammatory diet and do not eat processed foods. I do drink alcohol (I like a cognac) very moderately, and it doesn’t seem to cause any problems for me.