Manchester forum

[Purplelisa]

Was brill at the forum today met great people Maz is lovely, she was just how I pictured her so helpful, bubbly and kind hearted thanks Maz xxxxx

[Mazcd Partner MPNVoice]

Thank you both for coming, it was lovely to meet you at last Lisa, and Dean. Thank you both for being so enthusiastic, and thank you for your lovely comments. It was a great day with absolutely great people, you all make it worthwhile. Maz x x x x

[Twinkly]

How did it go at the forum today? Come on Louise dish the dirt ,I want to know all the details on the talk I missed ..it thundered and stormed at Windsor. Ch dog show , but it was worth the soaking ,we had a good day ..violet. X

[malachy]

It was a great day, many thanks to everyone who worked so hard to make it happen. Lovely to see you again Maz and to meet Alisa. Louise did a brilliant talk Violet and I am going to look into improving my diet, been wanting to for ages :-). Oh and my sister has a date from the day :-)! ...My thoughts are with the gentleman who collapsed, I hope he is feeling much better today? X

[Purplelisa in reply to malachy]

Which condition do you have, I'm thinking bout changing my diet to and have looked into buying the naked bars as I love my sweets and choc, oh yes I do hope the gentleman is ok he didn't look well at all, thank god he was in the right place, the christie is a lovely hospital much nicer than my local one xx

[malachy in reply to Purplelisa]

I agree Chrities is a great hospital. I have ET but have some PV symptoms. The nakd bars are a lovely substitute (but not quite the same for a chocoholic like me ) I will let u know when I get started. Sorry I don't think I got to speak to you on Sat. Good luck if u try the diet! Diana x

[Purplelisa in reply to malachy]

Hi Diana I say has you sister got a date with the gentleman that was in the stripy top he was on his own, I remember you and your sister, pretty blind hair ladies at the front of the room when we got into groups, hope it goes well for your sister , I did eat really healthy last year plenty of veg but got bored and gave up, the forum is such a great place to meet others. Hopefully we can all meet up again in a central place for us all

Lisa

[malachy in reply to Purplelisa]

Hi Lisa, my sister is on her 3rd date with the man sat on the front row with us, all good so far :-). I know what you mean about not keeping up with the healthy diet, I feel I let my busy life get in the way. It would be great for afew of us to meet up. Take care and hopefully see u soon! Diana x

[Mazcd Partner MPNVoice in reply to malachy]

Hi Diana, great to see you as well, and to meet your sister, thank you both for coming along and supporting us. Well, I hope the date goes well, so we can now add matchmaking to what happens at forums I have heard from Michael, who collapsed, and he is now at home and ok, he is just sorry that he missed the rest of the forum as he was looking forward to it. I will look into having a get together soon, maybe not Buxton this time but somewhere else we can get to and hopefully some others. Maz x x x

[malachy in reply to Mazcd]

Hi Maz, I am so pleased Michael is ok! I will definitely be up for a get together, let me know what I can do to help. Thanks again for a great day and all you do for us. See u soon and take care, Diana xxx

[Swede]

Wish I could have been there...never mind, next time,

eh?

[Tinkerbell13]

So glad Manchester so successful. I earlier found the Colchester Forum most helpful. Does anyone with ET have suddenly to cope with numb arm (tingling fingers) happened three times over 24 hours, once when driving and unable to change gear. Medical friends alarmed and say 'go to hospital' but I just wonder if it is just another ET symptom. Should be grateful to know of anyone having similar. Also has coincided with severe headaches.

[malachy]

Hi Tinkerbell your medical friends are right it is best to get it checked out. However I have a tingling in the extremities on occassion and many people do get bad headaches. Good luck and let us know how u go. Diana x

[ElsieR]

Hi Tinkerbell, My right thumb frequently goes numb but tingly, only rarely my other fingers do this. I just put it down to another of our strange symptoms I also am ET. Met my new haemo a few weeks ago. Hated the fact of change as I was used to my old one (who has now retired) however, new lady is lovely and has put me on a 3 month schedule! Just a shame my Warfarin is messing about and have had to go to that clinic weekly, trust it will soon settle again. E x

[Marie95]

Thank you so much for bringing the forum to Manchester Maz and Alisa, and for all your hard work and commitment my husband and I really enjoyed meeting all of you and being invovled, its so good for self esteem and exchanging stories, we met some lovely people,

[Twinkly]

Hey maz ,,have you thought of starting up a dating agency ,sounds as if we missed more than a talk about diet ,at Manchester forum. Introductions inc ....twinkly xx

[Hidden]

Wish I had been there! Sounds like a riot!