Is it within normal for a chronic migraine sufferer to have continuous symptoms for over 2 months?
Aside from the headaches, dizziness etc, the most difficult symptom is being woken every night with severe nausea.
I have preventative meds. This last week the GP has tried abortive meds: injectable sumatriptan and Migralieve. Migralieve not much use. Sumatriptan aborts the headache but seems to cause an even stronger headache 24 hours later.
I've had chronic migraines for 20 years and when they get bad on few occasions they've been continuous for 6-8 weeks.But I didn't have nausea in the night mainly in the mornings. I found it very hard to get a doctor to believe me at first but I have a really good neurologist now.
Last time this happened they put me on a large dose of naproxen which was tapered off gradually over the weeks. I was already on the CGRP Injector but had run through my triptans in the first 2 weeks so I couldn't have those.
Do you see a neurologist or is it just GP bc I would want a referral if not?
Thanks Cat00. Neurologist discharged me back to GP a couple of years ago after exhausting treatments for chronic migraine and cluster headaches. She has suggested a re referral though if the current regime doesn’t work.I’m glad you have a good neurologist.
That sucks cluster migraines and chronic migraines. No matter how bad you can be you always can meet some worse it seems, poor you!
I've had so many different meds over the years, I think it's coming up for 15 now. I've just been taken off the CGRP bc its not been working for the past year. It left my body a week ago so I'm expecting a bit of a nose dive. Although every time they found something that did work I would get to under 15 days a month so they'd take me off it and I'd nose dive again, so it's never been good for longer than 2 months.
I reckon you might aswell try and get a referral bc you don't really have many other options?
Hello, as an aside, could you tell me what your Naproxin dose was, when you were struggling?Many thanks.
Sorry to be bearer of bad news but im now 28 months i nto mine. But there is lots of hope. It has evolved and im loads better now than a year ago and way way better than 2 years ago. Im preventative failed aft 10 yrs. I assumed id increase the meds but instead was taken off them. Nausea and photophobia and phonophobia have been horrendous.facial tingling also. Tried dozens of things . You need a neurologist and lots of tests scans etc to rule things out.
Thanks Francesca21. I’m glad things are improving for you now. Sounds like it’s been horrendous. It’s looking like I will need a referral back to the neurologist which I was hoping to avoid.
I’ve suffered from migraines for 20 years and it has been chronic for about the past 5 years or so. Have been put on every treatment and am now receiving CGRP, first Aimovig and now Emagality. Sometimes you just have to break the drug taking and go cold turkey for a few days, otherwise it just goes on and on. One thing I find that makes it a tiny bit more bearable is my chill pillow ( a gel filled plastic pillow) which I use to cool my head down, sometimes all day and night. It’s been particularly helpful in this recent hot weather. You can pop it in the freezer for 10 minutes or so when it starts to warm up.
Thanks. That’s really helpful and I’ll definitely look into a chill pillow. I’m glad it makes a difference for you.
I had this my GP added in 10mg amitriptyline which took the edge off then increased to 25mg alongside my preventative Topimarate and the combination seemed to work.
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