Aura migraines

[Kevin160]

Hey everyone , im kevin , im 18 , i probably wrote here before a long time ago but im back

I wanted to talk abot my migraines, its not the pain that bothers me but when i was about 14 or 15 i had my first migraine with aura , i was at school and suddenly had this horrible tunnel vision and blind spots , it lasted about half an hour and went, my parents were saying that its likely low blood sugar

I thought over the years thats what it was, i thought it was a one time thing but then a few months later in 9th grade i got another one, the vision problems seemed to worsen each time , the following one happened about after , i wasnt too afraid as i knew what was to come, but then my whole palm went numb and tingly, i couldnt move it nor feel anything , since then i started to get really anxious about it

In 2018 i had one in january , one in late august bith with the horrible symptoms, then a one after a week from august it was scary that they were that close but that one was very mild with nothin but a vision disturbance aura

Then i got naother two one in november , i woke up from the pain and symptoms ,then another in january 2019

After the migraine in jan 2019 i decided to make changed, i started trying to reduce stress, improve sleep ,avoid iveruse of screens m bright lights etc.. diet changes to prevent blood sugar drops and dehydration , i thought it was working because it had been more than 9 months since that migraine, but a few days ago i had another one , it was as bad as it could have been, everything was more painful, sensitive and horrible

How can i cope with this, what if i got this when i was driving, taking an exam, im worried that this will effect my life alot, worrying how to make it less frequent , what if nothing works , im really scared , i know some people stop getting them when they get older but im worried thus well haunt me forever , does anyone have any tips , advice , ways to treat this or anthing that can help me feel less scared and frustrated

P.s most migraine were after a long sit in front of a computer , or after an exercise , or lack of sleep ,or after a stressful event , or temperature changed , i usually get them in winter idk .. i cant pinpoint the cause

[Hidden]

Hi

I'm sorry I can't help you but wanted you to know I'm thinking of you. As far as uni goes I know they can give you longer for work to be in and also in exams. Please take care of yourself Lynne

[Kevin160 in reply to Hidden]

Awh, you are too kind thank you for all the support ❤️

[Hidden in reply to Kevin160]

You are welcome!!

[Nonameavailable]

Hi Kevin.

I am sorry to hear that you are suffering the pain and frustration of this disease.

I have had migraines from childhood and have had to adapt ways of managing them throughout my life. I am well aware of the usual triggers for myself. That can be stress,strong smells especially perfume ,too much light and

changes in atmospheric pressure. Unfortunately I do not have 100% control over these and I have just hadto manage. With regards to foods I have been able to find what my triggers are and adapt diet.... however there are times in your life when it just gets the better of you unfortunately. And that's when sites like this is literally a life saver.

But for now ....

You can find the best preventative medication for you ,you can find the best triptans for yourself and you can make sure you don't have any postural issues and limit the time you spend on computers or get tinted glasses to make it softer.

For the bad times ...

For me it's being able to speak to people Or contact people via this page who actually know that it's not just a headache . It can be a terrible debilitating disease, but it didn't stop me having a wonderful younger life I was able to manage my migraines and carry on with work and socialising . I'm just having a blip , please don't be disheartened by the post I put up.

[Kevin160 in reply to Nonameavailable]

Its ok i totally appreciate your help , thank you for giving me some hope, im thankful that my case is also better than others , im also trying to manage through adapting to new diets, and habits , for example every few minutes of using or glaring into a screen, i usually lower the brightness and shut my eyes for a few seconds every once in a while, this seemed to help because im getting my migraines less frequently, ofcourse thats not just it, im reducing stress and my lack of sleep has shown to be a factor soi try my best to sleep well , but sometimes that doesnt work and i end up getting a horrible ahra which is soo painful and scary when you basically go blind and lose your ability to speak properly , move and stuff like that

[Nonameavailable in reply to Kevin160]

Yup .. I frequently talk gobbledegook....and sometimes I would swear other folk are talking Russian!!!!I also fall over and bang off things...balance just disappears. Mad sense of humour has been my saviour.

[Kelli0905]

Hi Kevin, sorry you are having a tough time! I Have the same migraines and I’ve had them since childhood but I am now 39 and they have gotten worse in the last couple years. Please try low dose aspirin (baby aspirin). I do it every other day sometimes every day. I haven’t had one in 4 months. It works as a prophylactic treatment (preventative). Not sure if it would work for you but it does for me! Good luck!

[Kevin160 in reply to Kelli0905]

Thank you for your advice ❤️

[lizzyjane68]

Hi Kevin 160

I'm sorry to hear that you are suffering so badly. I have had migraine for most of my life. With aura and hemiplegia. Make sure your employers comply with the disability act. Small changes in work could help. It is so debilitating. But you can live a relatively full life.

[Kevin160 in reply to lizzyjane68]

Well , im still 18 so i dont work currently , but i understand what you mean , changes can help me manage this better, thank you for all the help ❤️

[newbie1956]

Kevin, i just noticed this (yes, i'm following you now)

You probably know that migraine with aura is common.

Since STRESS is also very common, this link may help:

allabouteyes.com/stressed-s...

A suggestion to lower stress levels is to keep a journal.

Many people think a diary is the same thing as a journal.

However, there is a difference between the two.

A diary is a book to record events as they happen.

A journal is a book used to explore ideas that take shape.

PS Reading or writing poetry helps me a lot. <3

[Kevin160 in reply to newbie1956]

Haha yes i noticed and im happy you followed me , i will definitely try to start a journal and track my anxiety as well to find ways to reduce it, so far i didnt get a migraine since october 19th so actually 2 months to the day what a coincidence. I hope it doesnt get worse

Thank you so so much , i appreciate all the help and support you are giving me ❤️❤️

[newbie1956]

Well Kevin, you're like a grandson to me now

And i'm sure you'll get a lot of support from others b-c many are suffering

from anxiety/depression here.

When you've lived as long as i have you learn lessons in life & how to cope.

One major reason i've been able to endure 7 decades of extreme anxiety

and OCD is prayer & my strong faith. Many fail to understand that GOD

doesn't always remove the conditions or illness we have but He definitely helps us cope. That's been my experience.

PS

May i share a poem i wrote about my 18 yr great-granddaughter?

Let me know, ok

[Kevin160 in reply to newbie1956]

Yes i definitely believe faith is key , it helps us cope and makes difficult situations bearable , im honored u consider me like a grandson and i would be glad to see the poem you wrote ♥️♥️♥️

[newbie1956]

Kevin,

You are a blessing to me at a difficult time ...God always provides

I'm on the run now, but will share the poem for you

She was 6 yrs old when i wrote it

My Great-granddaughter

***************************

Her rosebud mouth is kissable as she sleeps and her face holds

no fear, no worry, anxiety, no nightmares, no concern at all.

Sometimes, she smiles & I stand quietly in the middle of the night

absorbing her pure innocence & marvel at the wonder, wanting to

scoop her into my arms & bury my face in her neck, holding onto

all her sweetness as if that would allow me to preserve this precious

moment forever.

**********************************************************

Kevin, I'd like to send a few photos also. But really need to run now.

Take care

[newbie1956]

Thinking of you today, Kevin.......

Hope to hear from you soon