I have been suffering from what I thought were hemiplegic migraines.
I booked a private appointment with a headache specialist that I could ill afford in an attempt to see if I could get a diagnosis.
After explaining my symptoms the doctor said it sounded like migraine with aura. So whilst I am grateful for that diagnosis I am confused. When I explained about my weakness which is not paralysis but quite bad weakness and a deep stiffness on my left side the doctor said it was sensory causing the weakness.
I have looked at the International headache society's criteria for migraine with aura and it is only sensory, pins and needles and numbness not weakness. Now if Hemiplegic migraine presents with paralysis and migraine with aura presents with sensory where does that leave people like me with weakness? I do get sensory symptoms aswell but I am unable to walk, lift my left arm as it is stiff and heavy. My chest also goes stiff and heavy and breathing and speaking is difficult.
The doctor is writing to my GP but I am worried that he will not understand the problems that I am having using my limbs during these attacks.
Also these episodes are definately happening at period and ovulation time but the doctor did not agree that this was the trigger. He did suggest that I could take the pill if I thought this was the case but I thought that it was not a good idea to take the pill with HM ( even though he did not diagnose HM). Is Hemiplegic migraine diagnosed in only paralysing weakness? What about milder weakness?
Thanks for any thoughts