My experience with Topomax

[Onthemove1971]

I had been taking Topomax for a few years and then I was getting daily or every other day migraines. I also started to notice my memory change ( passwords were hard to remember, I could not remember a unfamiliar phone number if I saw it once, I couldn't go to my phone and put it in..etc.) So I decided to reduce the dose and things were still really bad, so I increased all my supplements (B2, feverfew). I got worse so I decided to stop everything except magnesium and I reduced it to 750mg from 1000 a day.

Guess what? migraine are minor now. Not daily and when I get them they are small. My memory is so much clearer and better. I cannot say for sure, but I believe it was the topomax. I feel %100 better off, have more energy and now I am hoping to control them with OTC, Pepsi and imitrix.

I know it might be hard at first, but you mighy try going off the preventitive and see what happens.

It has changed my life..

[lewmax]

I'm having the same problem with memory in fact I was diagnosed with dementia but feel it is because of Topamax. I have taken Topamax 4 over 20 years. I am cutting it down one pill at a time slowly hoping this will help my memory and it's not too late!! Good luck to you.

[Onthemove1971 in reply to lewmax]

I am so much better now, I really hope it is the Topomax. You will notice the difference right away.

I tried to taper and just went cold Turkey.

Best of luck.

[Winnie77 in reply to Onthemove1971]

I have been weaning off Topamax very very slowly. I can’t believe you went cold turkey! But thanks for the magnesium dosage suggestion. I’ve been taking just 350. Going to up it. Thinking of adding feverfew but not sure...

[Onthemove1971 in reply to Winnie77]

I tried fever few and it didn't help me. My body can not tolerate high doses of magnesium so I am only doing 500mg. 250 am and 250pm..

Still struggling!

Take care

[MissMarple74]

I had the same problem. Family noticed I couldn't retain simple information. I felt confused and scared, as I thought it was dementia. I stopped taking the topomax and over time I have dramatically improved.