Nerve pain a part of migraines?

[Lily-bee]

Hi I'm new here. Just wondered if anyone suffered with nerve pain as part of migraines. I now have nerve pain everyday in my peripherals. It moves about and can change in severity. Anyone else? Any advice? Been going on for about 2 months now.

Lily-bee 😊

[Frodo]

It may or may not be connected to migraine. Sometimes there's more than one thing going on. Check with your GP.

You could also look into B12 deficiency, there's a group here on HU with links to lots of info.

[Lily-bee in reply to Frodo]

Thanks. I have asked my gp 3 times to check my vitamin b12. Still haven't done it! I feel like maybe my symptoms can't ask be explained by migraine, that's why I wanted to ask if anyone else had similar problems. I'm also falling over all the time and loads of other stuff that I never associated with migraine however it seems like there's much I didn't know, thought it was just some flashing lights and a headache lol. Thanks for your advice, I'll check that out. 😊

[Frodo in reply to Lily-bee]

There's also APS or Antiphospholipid Syndrome, sometimes people with severe migraine from an early age and other symptoms have this. It's an autoimmune disorder. It's unlikely your GP will know about it or want to test you for it though. Again, there's a group here on HU.

ghic.world/hughes-syndrome/...

[Frodo in reply to Frodo]

One problem is that once you have a diagnosis of migraine it's hard to get a diagnosis of anything else and migraine can actually encompass a wide range of neuro symptoms, including balance issues and stroke-type events. It can change as well so your symptoms are different year to year.

However with symptoms like you describe I would have thought you should have a referral to a neurologist or preferably headache specialist for starters. As well as the B12, ferritin and folate test and possibly the APS antibody test.

B12 testing as you've probably seen isn't entirely accurate, if you're within the low normal range but are symptomatic you'd really need homocysteine and MMA tests for a more accurate picture. The other B12 tests, for autoimmune PA, aren't particularly accurate either.