Migraines

[Poppyclaire]

Hello nice to meet you all, I'm hoping for some help and advice in managing this condition.

[Cally01]

Hi Poppyclaire, have you been diagnosed by a neurologists and do they have you on any prevention meds/ painkillers etc.

It is a brutal illness to have and it doesn't discriminate the worse thing about it is that there is no magic cure that fits all. Wee all have different things that help but it's trial and error and uterly exhausting.

How have you been coping so far ? What have you tried?

This is the best place to be, lots of good advice on here.😀

[Tarundhev]

Migraines are just an awful experience one has to to go through. I'm just 17 and started getting migraines at the age of 8. My parents thoughts these were just normal headaches, until they became more frequent. I was then referred to a peadtrician doctor by my GP as I described the full aura visual blindness as I used to look at my hand at a distance and see it was patchy. After my aura I would go on to vomit for at least 2 hours if not more, and I only knew once everything was out did I feel better. I would then feel ok but very lethargic. My treatment was and still is a 1.5mg Pizotophen to some affect works, but in have my doubts. I was given a nasal sumatriptan spray and that did nothing for me. Until recently I have been given tablets to take on the onset, so I'm hoping this will work.

Every time I've had a migraine attack my mum has been with me supporting me as I have no energy.

I've tried breathing techniques, head massage and nothing seem to work, and I have found until I haven't vomited it all out, I won't feel better and my headache won't go away!

[Shawnie]

Hi Poppyclaire. Sorry that you have this condition. I had episodic hormonal migraine as a young adult ...... then 5years ago they increased to 12 monthly then, over next 2 years increased to daily migraine, which is what I now try to live with. The last 2 years with daily migraines, which wake me from sleep every night have, been very dark. It is so very very hard, as it disrupt your life so badly. Advice is not easy ....everyone will strive to find their way to cope but it takes a while. If you have an understanding G.P it will help. I have tried yet every preventative medication on offer... but avoid all painkillers.....I am trying yet another drug but also trying to get control of my life again. I have been helped a lot by realising that I am not alone. Support forums help... and may lead you to find a way to take control. I wish you all the best.

[Poppyclaire]

Thank you for your replies.it is comforting to know I'm m not alone.

I am seeing a neurologist at the moment, he tried me on botox injections but they didn't work. I've tried so many different tablets and have had no luck with those either. I've been prescribed funazarine but not happy about taking it as it can cause depression and weight gain. Last year I put on three stone in seven months when I was on some tablets for epilepsy.

I really don't want to swap one illness for another.

I see the neurologist later this month and will see what the next step is.

Do you find people sometimes struggle to understand this condition? It is so debilitating and I feel cut off from the world. X