Migraines: Hi! Everyone. I suffer from... - National Migraine...

National Migraine Centre
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Migraines

Gaysie
Gaysie
β€’25 Replies

Hi! Everyone. I suffer from migraines and have done for at least 25 years. I enjoy the outdoors and family time.

25 Replies
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Hey Gaysie, sounds like your managing your migraines fine for now, i too love out doors but I'm lucky these days if i get into my garden.

Be well πŸ˜†

Gaysie
Gaysie
in reply to Cally01

I don't manage them. I get about 2 days a week without one. I don't like taking so much medication. Have decided to try a naturopath. 😊

Cally01
Cally01
in reply to Gaysie

Awe 😒 I have them every day 24/7, i had a break os about a month with background headache which didn't turn to migraine from June to July but that's down to the treatment im having for my jaw.

Have you never seen neurology in 25yrs? I've had migraine 38yrs now, managed them quite well until 2014 when they changed.

No quality of life, can't arrange things, go anywhere and problems holding down jobs , it's just horrific 😣

Gaysie
Gaysie
in reply to Cally01

Very sad for you. Yes I have a brain scan twice. I am looking fwd to see naturopath. You take care.

Cally01
Cally01
in reply to Gaysie

You too πŸ˜† let me know how neuropathy goes πŸ˜†

Good luck πŸ‘

Gaysie
Gaysie
in reply to Cally01

Naturopath. I will indeed.

Cally01
Cally01
in reply to Gaysie

Oops !! Fat fingers πŸ˜†

Good luck πŸ˜†

Gaysie
Gaysie
in reply to Cally01

πŸ˜‰

Honkyjayne
Honkyjayne
in reply to Cally01

Hi you sound like same as me at the moment I feel like givin up I've had migrains since I was 16 now 59 still got um tryed all kinds of meds to no avail now they want to try botox I'm very unsure about this as it is injecting stuff I don't know the pills are already bad enough I hate it all I get like electronic shocks in my head when I get relief from the pain which out of a month is about 2 days and it's hard to explain to the consultant they don't listen really just fire out questions then don't let you answer all just quick answers .sorry going on a bit feel down exhausted and fed up of it. Hope you too get relief. Jay

Gaysie
Gaysie
in reply to Honkyjayne

I take rizamelt at onset. Magic meds. I would definitely do botox but I can't afford it. So if you can, give it a go.

Hi if you are in the UK Botox is available on NHS through referral by Neurologist

Certainly not in New Zealand. That's where I live

Ah that's a shame. My friend in NZ takes Norpress 10mg at night and thinks they're wonderful. Good luck

Yes I have heard of that. I am going to try a naturopath next week. I also take magnesium tablet everyday.

babs1234
babs1234
in reply to Gaysie

Sounds like you suffer from cluster headaches.. do you get auras

Gaysie
Gaysie
in reply to babs1234

Yes. I so get auras but if I do I get no headache. No aura, get headache.

babs1234
babs1234
in reply to Gaysie

Yes I have had silent auras and headaches without aura and Headaches with aura. So many different variations 😟

His gaysie

You surprised me cause migraine recently started about 7 month now

And I can't cope with it at all

Most time on bed covered all my head

Take medication and still really bad .let me know if there a good way to start or deal with.

How you mange for 25 years ??

Wish you good enough!

Kind regards

Sahar

Gaysie
Gaysie
in reply to sa7ar

I take rizamelt at onset which I melt on my tongue and controls the headache

sa7ar
sa7ar
in reply to Gaysie

Thank you Gaysie in replying

I'm on rizatripan 10mg maxlt melt table for 6 month now + topiramate 25mg daily. And still can't cope with it .

Gaysie
Gaysie
in reply to sa7ar

That makes me so sad for you. It's just not fair is it?

sa7ar
sa7ar
in reply to Gaysie

I'm very sorry GAysie !πŸ˜‡πŸ˜‡

Margauxjean
Margauxjean
in reply to Gaysie

Gaysie, how many Rizamelt per month do you take on average?

Gaysie
Gaysie
in reply to Margauxjean

Sometimes 3 over 24 hour period. It's hard to put an actual amount.

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