I had my procedure on my jaw yesterday and it didn't go well. Been having multiple daily migraine since Oct 2014, neurologist diagnosed hemacria continua and I've had every prevention med and treatment available both nhs and private. Nothing worked/helped and i was told i was an anomaly. No one was listening! For 2yrs I've been tellng my GP and all the specialists that my left jaw feels tired if i talk for more than 10mins/ you can clearly see swelling and it hurt. He just said it was something wrong with my ear and prescribed antibiotics. I jumped through all the migraine hoops/ tried everything they had. I needed to tick them off the list ( as unsuccessful ). Still no one listened about my jaw.
I sourced a private consultant Oral & Maxillofacial Surgeon and although i had had 2 MRI scans done by neurologist he needed to do another because he couldn't get access to the nhs one.
He immediately saw a problem, cartilage damage on left jaw, no cushion between jaw bones which caused all of this :-
Severe daily migraine like pain, dizzyness confusion, fatigue, pain behind eyes, both temples, base of skull, temples and base of skull go very hard and you feel heat, pain in left ear but no infection, tingling on top lip and left fingers. Painful neck and shoulders, felt my head was always too heavy.
Just lying on my back i would feel pain building at the back of my head and get a massive migraine, never felt like i could release the weight of my head off my neck.
This is very easily misdiagnosed as a migraine condition and many people suffer for years being treated for migraine and nothing eases the pain.
I have now unfortunately been advised ( as i woke from the anesthetic ) that the procedure didn't work which is very unusual. Even although i was paralysed and had loads of muscle relaxant my jaw wouldn't open on the left, the specialist confirmed it was locked on the left and i need a bigger operation . I am devastated . Had i been diagnosed propery 11/2 yrs ago i would have the energy to fight, being put through all the neurologist hoops and soul destroyed with medical professionals and NOW getting listened too....i am exausted with it.
Neurologist starts their treatment with "medication over use" it's an absolute joke. The don't look outside their own little box and "first do no harm". In 6wks i will go under the knife again.
Please, if you have all of these symptoms fight for the proper diagnosis.
I have no signs of grinding or clenching my teeth/jaw - confirmed by specialists.