Neck problems with chronic migraine

Hi me again. It's so good to have people who know what I'm talking about to ask questions. I sleep for 4-5 hours a night. I am woken with horrendous pain at the base of my skull and neck. It feels like a rod has been pushed into my skull up my neck. It cracks and grinds. If I try to sleep on I end up either with a migraine or unable to sleep but if I sit up or get up, exercise my neck then sometimes I can doze off again. My neurologist is adamant it's migraine causing this. I feel it's physically my neck. Does anybody have the same. Thank you

20 Replies

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  • Hi, my neck usually hurts during a migraine and I often wake up with a migraine too. My neurologist said it was the neck causing the migraine though (my migraines are from viral meningitis which caused a very bad neck). I have been having acupuncture (nhs) and osteopathy (private) targeting the upper spine which seems to help.

  • I have a similar problem, where my migraines (which last for a few days) aggravate my neck and upper back / shoulder on the right hand side. The muscles often stay stiff and achy after the migraine is gone. My neurologists, too, say it is caused by the migraine, rather than the other way round, and in my experience, this is probably right. Having said that, I get some relief from massage and osteopathy and stretching, so do this relatively regularly. It doesn't stop the migraines from coming, but makes the pain experience more manageable.

  • Hi Jackie - I get the same - mine occasionally come on during sleep, mainly during waking hours. Everything I've been told and read is that the migraine causes the constriction neck pain - not the other way around. I always get a small egg sized lump on the right side of my neck, base of skull. Mine got worse at meno. Wish I had some answers. If possible to do, forward and backwards shoulder roll exercises in a hot shower help a bit to relieve neck/shoulder pain. You have my sympathies. It is hard work living with migraine.

  • Thank you for your replies. It just seems an endless round of head and/or neck pain. Think I'm suffering because of very poor sleep too, due to menopause. Yes massage and chiropractor have helped lessen the severity but not taken them away as they suggested. Worth a try though. Thank you

  • Hi there, I too have awful neck pain and also around each shoulder blade. I am currently waiting to try botox although my waiting time has been 9 months now! It was suggested by my neurologist. Also recently , unknown to myself I paid for a private mri neck scan and discovered I have 2 quite bad prolapsed discs! The pain is pretty hurrendous and I very often wake up with a migraine. I too am menopausal so struggle with night sweats and rubbish sleep! I have had many years of chiropractors, osteopaths, acupuncture, physio and nothing ever seems to have a significant improvement. It has been suggested that The Bowen Technique can be good for neck pain/migraine related problems. I will try it at some point. I have been trying to attend 3 yoga classes per week for the past two years as the stretches do feel good for the rest of my body but my neck pain and in between my shoulder blades remain pretty awful most of the time.

    Good luck in finding anything that can help. . .migraines are the pits.

    Xx

  • Thanks for your reply. I had a scan about 8 or 9 years ago that showed narrowing between joints in my neck but this seems to be ignored. I've been offered botox and am considering. I've also been offered a 4th attempt at dual trigger point injections. They feel they should work as it's exactly where the pain is but haven't on the last 3 attempts. Bit at a loss really. Good to share though thanks

  • hi ya im steve and ive just had another mri scan done on me and they have found it is to do with crumbling bones after suffering with the same problem as you,my results came back last saturday by post and i was horrified to read this,i now need to see my doctor to find out what can be done.steve

  • Hi Steve. Would that be the same as brittle bones? You really need to get to your GP and get this sorted. If you don't mind me asking, how old are you

  • Good evening yes i am making an appointment with my gp as i am 51 and i am slightly worried as my job requires me to travel around and to do other shops like a relief manager( i am a store manager)and seeing in the newspapers in the morning they can be very heavy,i still get headaces as well.thank you babs for the reply hope to keep in touch with you.steve

  • I too get this in my shoulders an up to the base of my skull, my dr says I have osteoarthritis in lower back and 2disk out of line at the base of the skull. Hope this helps

  • I was having terrible migraines everyday/night. The neurologist kept giving me migraine meds that did not work!! Finally, I went to a Pain Management Specialist, he did an exray of my neck...I have bone spurs on my neck!! He told me to go buy a cervical neck pillow that I purchased from Walmart less than $10, told me to wear a plain neck brace around the house and a RX for Cambia. Headaches were GONE within 2-3 days..... Finally, a doctor that actually cares!!! I was also having severe pain in my lower back.... well..it was a day I was feeling pretty good and teaching my 21/2 year old grandson how to jump like a frog. By that afternoon, I was in so much pain, I was in tears..falling down, etc. Called him, he gave me a shot of Toradol that only lasted about an hour... I called him back, he scheduled me an appointment for 7am next morning. Apparently, the RHEUMATOLOGIST that I was seeing failed to tell me/didn't read the MRI from 2009....I have a bon-beneign hemogeninoma wrapped around my lower spine L-2. It was very inflammed and I was in so much PAIN. I kept telling her that my back hurt, was falling down constantly, losing my balance, etc. It makes me so angry that she just didn't care, etc. But, I would definitely have them do xrays of your neck!!! Most of these doctors just don't care...its so sad... But, I finally have found a good, caring doctor that actually listens and is not a drug-pusher!!!! Good luck!!! It's so painful.... I've had panic attacks and a migraine going on almost 2 months now!!!

  • Ah I'm sorry you're in such pain. I will push for more investigation of my neck. Thank you for your reply. Take care

  • my neck hurts a lot as well and headache sometimes comes from the neck to the head. l often sleep in scarf - that helps. l have noticed that during winter l get more headaches in a morninig because temperature difference between your body (under blanket) and head - differs too much. sometimes l sleep in a hat 1 ;)

  • Hi Jackie - yes my migraine pattern has recently become like this. A cracking noise /feeling when bending the neck that is there through the day aswell aswell as migraine . This is in the base of the neck and leading to problems with the side of the body and head [especially behind the eye ] that this occurs on . Sleep is also much inhibited - early hours waking ..

    I am on Pizotifen daily though and have started to lower the dose as headaches were occurring daily even on a highish dose. I also get the egg lump thing at base of skull behind the ear. I know I should take the time out to do some relaxation/stretching exercises and have been recommended yoga techniques.

    Rog

  • Hi Rog thanks for your reply. I have been recommended yoga too. Must give it a try. I do find short meditations relaxing but they don't help me sleep more than 2 hours without pain. Keep trying

  • Hi Jackie

    I suffered from chronic migraines for over ten years. Three years ago I suffered chronic wiplash resulting in neck pain which can lead to migraines so I know the difference and I can guarantee you will find great improvements with regular chiropractic care. As your user name mentions Sutton I take it you are in that area. I go to a fantastic chiropractor in Bromley who will take an x ray to check for postural problems. It is a pain free treatment and will give you great relief. The pain your are describing is horrible and presses on a nerve at base skull which in turn causes migraines. Please contact Dr. Adil at Bromley Chiropractic clinic and mention me Debra McKay. The number is 0208 466 8283 In the meantime place an ice pack in the area for 10 to 15 mins max and repeat hourly or when needed to relax the trapped nerve which is causing the pain. Also you can just place gentle pressure with index finger. Please don't worry it's curable. Good Luck

    Debra

  • Hi Debra, thanks for your reply. I'll certainly look into your suggestions but unfortunately I don't live near you. Sutton is my name I actually live in Liverpool. I do find the ice gel for muscle injuries helpful on my neck and forehead.

    Thanks again Jackie

  • I often get migraines in the neck. It's just one site of the pain. Osteopaths argue that all migraine starts with neck tension. Mine are related for sure.

    Often the pain just stops, like with migraine in the top of your head. If it was a hurt neck it wouldn't really go like that..

  • Hi Jackie - how are you doing? Menopause can make migraines much worse, the fluctuation and loss of hormones.

    Crippling migraine (always starts in the neck, right sided pain, right eye droops) returned (from childhood) at 44 when my periods stopped. I'm on HRT - lowest dose estrogen patch and progesterone 6 weekly. It helps to control the day flushes but not the night sweats. In my case, without HRT the migraines are much much worse, I just wouldn't have any life at all.

    Are you on HRT?

  • Thanks for your message. I agree the menopause does seem to have worsened the migraines. I do find any alcohol makes the flushes worse. The Doctor took me off mini HRT patches because of migraine. I can't say it made my head any worse or better but it really helped the flushes.

    Since Christmas my head has been great and I wonder if it was because I was off work. However last night my neck went stiff and sore with pains down my shoulders. It feels so tight.

    I do think sleeping for no more than 6-7 hours and using feather pillows has helped my neck. Not over sleeping is part of the regime the Neurologist said I should follow. However my painful neck and shoulders just seems to come and go at random.

    I hope your symptoms lessen soon.

    Jackie

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