Odd migraine experience.: I often get... - National Migraine...

National Migraine Centre

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Odd migraine experience.

kymkat profile image
6 Replies

I often get migraine type headpain that is usually sited at the part of head directly above the ear on the left side and the base of the skull, the pain is unbelievable and is very sore to touch,another part is at the back of the eyebrow,when this happens even wearing glasses hurts,this is accompanied by dizziness and nausea at times,I feel stupid asking my gp as he doesnt seem to understand me,my MRI showed no growths but some small lesions.any ideas as to what this is,my scalp often hurts without headache?

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kymkat
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6 Replies

Sounds like migraine to me. Do you have a reason to think it isn't migraine?

kymkat profile image
kymkat

Only that it isnt like my "normal" migraines that are usually more frontal.

MaryF profile image
MaryF

Ask him to do blood tests for autoimmune disease they are cheap to do... and will rule out those. Also a test perhaps for lyme disease all these can cause problems, and can give in the main a yes or no answer, if this is losing you time at work and quality of life, you need tests... and of course the National Migraine Centre might come up with some answers for you. Especially if you take along the tests you have already had. Mary F x

Charlotte_NMC profile image
Charlotte_NMCPartnerNational Migraine Centre

Come to the clinic with any test results that you have had and we shall get a diagnosis and personal treatment plan drawn up for you to treat the pain and nausea/dizziness and develop a strategy to reduce their frequency and severity. It is common for people to get more than one type of headache so this may explain why these headaches are not like your 'normal' ones.

If you are worried however do go back to your GP.

All the best.

kymkat profile image
kymkat

Thanks for your responses everyone, yes, I have autoimmune diseases,I have had treatments with various medicines but have come to the conclusion that this does not really address the problem,I will certainly consider that option.

Hi there

Do you also get face pain with that pain above the ear?

I frequently get what I call facial migraines: the pain will be on one side: around the eye, jaw, teeth and often the bone above the ear which you describe and the ear itself. I believe this type of pain is from the migraine affecting the trigeminal nerve. In some ways this is the worst pain I can get, it makes me want to cry. It seems very similar to what you experience.

My comments are only to share my experience of migraine, please take the experts advice..

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