Will try and keep this short as I know it will be boring! Two years ago I started suffering headaches on the top of my head like a burning pressure. MRI normal, CT normal and MRI neck showed small disc bulge at C5-C6 not causing this pain apparently.
Tried amitriptyline with no help and eventually saw headache clinic who started Gabapentin for suspected allodynia. Started at 300mg and worked up to 1800mg with no help over last few weeks.
Actually now have intense sick headaches so have had to reduce dose back down to 900mg. I just don't know where to go from here! Not only has the pain not gone but it's got worse and is now making working difficult as I just want to sleep all day which also doesn't help!
Any advice from anyone who has experienced allodynia on the head? It's a burning patch to the left of the crown which moves. Or anyone with experience of Gabapentin use and it causing daily sick headaches? I'm going mad!!!
Thanks!
Have you ever had your B12 and folate levels tested.
The fact that your condition got worse with gabapentin - which is known to affect B12 absorption - might indicate that an underlying deficiency is contributing to the problem. Neuropathy (and from my experience and altered sense of pain etc) are also outcomes of a B12 defiency.
You can find a list of the many and varied symptoms of a B12 deficiency here.
pernicious-anaemia-society....
just in case other things ring true.
Doctors can be very confused about what B12 deficiency is and may rule it out completely if anaemia isn't present but anaemia isn't necessarily among the first symptoms to appear.
Diagnosis can also be difficult as there isn't a good test and really at the end of the day the only way to diagnose it is from clinical symptoms - but most GPs etc aren't aware of this - so another problem.
If you think it is likely then would recommend joining the PAS forum on health unlocked as a place to get support whilst looking for a diagnosis.