Hi I'm new here,
I'm wondering if anyone else has literal chronic migraines or atypical ones.
I always feel a bit strange using the term chronic, as Drs respond with the question 'How often do you have migraines'. To me chronic is pretty self explanatory but I understand that the medical definition is something like 15 days per week of headaches, 8 days of which are migrainous?
For me, it's been concluded (by specialists) I have none-stop silent migraines (lots of aura & sensitivity), with chronic headache (I've never had a day without a headache, I don't know how that feels) and more typical migraine pain (as in disabling pain) happens at least some point every day. They've suggested I have several types of migraine at once, perhaps this is normal? (Cluster, chronic and vertiginous are the ones floating about right now.)
I'm not always completely disabled by the pain, but I've gotten used to a lot of the pain.
The way I explain it to people is that I have a base level headache/migraine that is tolerable, but I seem to be triggered by every possible trigger, so they add on additional migraines at different points in the day. And sometimes they totally pass the threshold.
I'm used to walking around being able to just about see colours only, and only pointing out I'm having trouble seeing when everything is turning white. I don't normally point out I'm in pain until I'm shaking uncontrollably from it. So I often talk as though I'm 'starting to get a migraine' when in reality, I always have one.
I always feel a little unsure of what to call my experience as it's not typical (bilateral often, mix of symptoms that over lap different migraine types, completely chronic symptoms).
I feel there should be serious pain to qualify as a migraine, but also feel that I don't have silent migraines because I always have moderate pain. >__<
Anyway, I haven't met anyone who has this experience so was hoping there'd be someone here with it? Even if it's just at some point in their life?