Rimegepant

[Headache123]

hi has anyone had Rimegepant for chronic migraine? Could you get it on NHS?And did it help thx

[Cat00]

It's not available in my area but it should coming soon my neurologist says..

[Headache123 in reply to Cat00]

Thanks for your reply Cat

[Pingez]

Hello. I have tried this, but had to go privately for it, because according to the NICE guidance, it has only been ratified for episodic migraine, so chronic sufferers like us would not be allowed it. You may wish to check this, but this is my understanding. Therefore, I paid for it. It was hideously expensive, but the cost did come down as I used it. It's still hundreds per month, but it may have come down a bit more since I used it.

Sadly, it didn't really work for me, either as an acute medication or as a preventative. I gave up the experiment after 6 months.

Currently, I am on the Vyepti infusion and this has really helped. Again, I've gone private. The National Migraine Centre are able to supply it for around £700 every 3 months.

Trouble is, there are currently only 3 centres offering this: Ilford, Rochester and Glasgow. Don't know where you are but I'm in North of England so any way is a bit if a trek.

Sorry I can't help with the NHS bit. Hopefully you may have more luck than me.

[Headache123 in reply to Pingez]

Really helpful many thx and i will look into it. Sincerely, hope that it keeps helping you

[AMG26]

Hello! I live in Wales and it’s not available here yet. Really hoping it will be soon.

Let me know if it does became available to you and if you try it

[PurpleTranmere]

I wasn’t eligible for it as it’s not available for chronic migraine sufferers on the NHS. My neurologist said they are not really prescribing it as it doesn’t seem to be helping the people they have prescribed it for.