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Experiences with
Mepolizumab
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Richard
I recently changed from
Mepolizumab
monthly dose after 8 months and started on Dupilumab twice month.The results have been noticable by myself and others. I have far more energy now. Still coughing a little though, but I can live with this if my energy had improved.
I recently changed from
Mepolizumab
monthly dose after 8 months and started on Dupilumab twice month.The results have been noticable by myself and others. I have far more energy now. Still coughing a little though, but I can live with this if my energy had improved.
RKC123
in
Asthma Community Forum
3 months ago
Eosinophilic Asthma
In the US the brand name is Nucala, here it’s
Mepolizumab
.
In the US the brand name is Nucala, here it’s
Mepolizumab
.
G410way
in
Lung Conditions Community Forum
6 months ago
Side Effects of Mepolizumab Injections??
Hi, I have eosinophilic asthma & so far I have had 6 injections of mep, first 4 I felt great, came off the steriods my breathing was much better and much less coughing & had energy to be able to do things, however, these last couple of months, I've had continuous body pains, especially the tops of
Hi, I have eosinophilic asthma & so far I have had 6 injections of mep, first 4 I felt great, came off the steriods my breathing was much better and much less coughing & had energy to be able to do things, however, these last couple of months, I've had continuous body pains, especially the tops of
Lhasa3
in
Asthma Community Forum
1 year ago
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infliximab or upadacitinib
Hi All… Just looking for a little advice. I am currently on vedolizumab but unfortunately after 3 years it has stopped working. I am currently in a very nasty flare and have to choose which biologic I would prefer to try next, Infliximab or a new drug called upadacitinib. I know we all react differently
Hi All… Just looking for a little advice. I am currently on vedolizumab but unfortunately after 3 years it has stopped working. I am currently in a very nasty flare and have to choose which biologic I would prefer to try next, Infliximab or a new drug called upadacitinib. I know we all react differently
Janeywoo
in
Crohn's and Colitis Support
6 months ago
Mepolizumab Injections
Hi, could anyone advise re these injections please. I've had 2 so far & the last couple of weeks my bowels have been hay wire, very bad wind & also leakages. They have certainly helped my asthma but wondered if these side effects settle down. I was ok after the 1st one but this 2nd one has had a
Hi, could anyone advise re these injections please. I've had 2 so far & the last couple of weeks my bowels have been hay wire, very bad wind & also leakages. They have certainly helped my asthma but wondered if these side effects settle down. I was ok after the 1st one but this 2nd one has had a
Lhasa3
in
Asthma Community Forum
1 year ago
A bit of advice please
I have Eosinophils Asthma and take
Mepolizumab
injection plus use a couple of steroid inhalers. I am please to say that my asthma is well under control and I am able to exercise. Prior to the asthma I successfully used ibuprofen to help with inflammation.
I have Eosinophils Asthma and take
Mepolizumab
injection plus use a couple of steroid inhalers. I am please to say that my asthma is well under control and I am able to exercise. Prior to the asthma I successfully used ibuprofen to help with inflammation.
Deverdad
in
Asthma Community Forum
1 year ago
How long did you wait for biologics?
They've said I qualify for two diff ones: Nucala (
mepolizumab
) and Fasenra (benralizumab) and think that the Faserna will be best.
They've said I qualify for two diff ones: Nucala (
mepolizumab
) and Fasenra (benralizumab) and think that the Faserna will be best.
Blueberry37
in
Asthma Community Forum
10 months ago
Dupilumab and e-Asthma Part Two
I have the same side effects as had with
Mepolizumab
- headache, nausea and itching but this may be because I had such a high dose first time. Forever the optimist as you can see. Well lovelies, off to a meeting but will post another update in two weeks.
I have the same side effects as had with
Mepolizumab
- headache, nausea and itching but this may be because I had such a high dose first time. Forever the optimist as you can see. Well lovelies, off to a meeting but will post another update in two weeks.
corinneyvonne
in
Asthma Community Forum
1 year ago
Joining the dots......
Unfortunately despite having
mepolizumab
, benralizumab and omalizumab I have had little relief - eosinophils and FeNo remain high. To have a normal (ish) life I need 50 mg of steroids a day - out of the question. After finishing on omalizumab I was uncertain what the hospital could do.
Unfortunately despite having
mepolizumab
, benralizumab and omalizumab I have had little relief - eosinophils and FeNo remain high. To have a normal (ish) life I need 50 mg of steroids a day - out of the question. After finishing on omalizumab I was uncertain what the hospital could do.
Madbiker1
in
Vasculitis UK
2 years ago
My unicorn journey continues...
So, ive been discussed at MDT again... as i reacted to benralizumab then was switched to
mepolizumab
again reacted within 5 mins... respiratory team have now said i cant have any interleukin (IL)-5–eosinophil pathway treatment, including
mepolizumab
and reslizumab that target IL-5 itself, and benralizumab
So, ive been discussed at MDT again... as i reacted to benralizumab then was switched to
mepolizumab
again reacted within 5 mins... respiratory team have now said i cant have any interleukin (IL)-5–eosinophil pathway treatment, including
mepolizumab
and reslizumab that target IL-5 itself, and benralizumab
mylungshateme
in
Asthma Community Forum
2 years ago
allergic to benralizumab today started on mepolizumab feeling rough
hey so after 2 stat doses of first biologics I had to go back to mdt to be discussed as was reacting within minutes each time and requiring close monitoring for 4hrs both times. So today started mepo within 5 mins same but not quite so severe I feel rubbish. They've now added benralizumab to my list
hey so after 2 stat doses of first biologics I had to go back to mdt to be discussed as was reacting within minutes each time and requiring close monitoring for 4hrs both times. So today started mepo within 5 mins same but not quite so severe I feel rubbish. They've now added benralizumab to my list
mylungshateme
in
Asthma Community Forum
2 years ago
Eosinophilic Asthma and Mepolizumab
Hi everyone I have been successfully controlled by Mepo for just over 4 years. However just recently it has stopped working as effectively. I am being reviewed by my consultant. Has this happened to anyone else and if so what drug have they replaced this with? Many thanks, Corinne 😁🙏
Hi everyone I have been successfully controlled by Mepo for just over 4 years. However just recently it has stopped working as effectively. I am being reviewed by my consultant. Has this happened to anyone else and if so what drug have they replaced this with? Many thanks, Corinne 😁🙏
corinneyvonne
in
Asthma Community Forum
2 years ago
Dupilumab and e-Asthma
I was on
Mepolizumab
but last October it stopped working. It had worked really well for 4 years but suddenly didn’t. No one can tell me why and the most frustrating thing is that no one believed me when I told them. I have spent countless hours on the telephone and sending e-mails.
I was on
Mepolizumab
but last October it stopped working. It had worked really well for 4 years but suddenly didn’t. No one can tell me why and the most frustrating thing is that no one believed me when I told them. I have spent countless hours on the telephone and sending e-mails.
corinneyvonne
in
Asthma Community Forum
2 years ago
Adolescent son starting Mepolizumab
Hi there, my 16 year old son is just about to start
Mepolizumab
. His consultant and respiratory nurses are amazing and have been great at talking us through this but just wondered if some of you who are on Mepo or have been had any words of wisdom/advice/support to share.
Hi there, my 16 year old son is just about to start
Mepolizumab
. His consultant and respiratory nurses are amazing and have been great at talking us through this but just wondered if some of you who are on Mepo or have been had any words of wisdom/advice/support to share.
HaydiesMum
in
Asthma Community Forum
2 years ago
Changes in type of asthma
So when the information arrived l was surprised to see it was for Nucala (
mepolizumab
) not xolair as previously discussed, when l questioned this they said my markers had changed over time and now l was classed as having severe refractory eosinophilic asthma, hence the change in injections.
So when the information arrived l was surprised to see it was for Nucala (
mepolizumab
) not xolair as previously discussed, when l questioned this they said my markers had changed over time and now l was classed as having severe refractory eosinophilic asthma, hence the change in injections.
Elly1970
in
Asthma Community Forum
2 years ago
Vedolizumab
Hi currently sitting in hospital male aged 64 Llifelong Crohn's have blood transfusions, iron infusions and B12 injections. Previously had Neutropenic sepsis mesalazine killed my white blood cells. Anyone using vedolizumab how is it going? Any info! Once my issues calm moving onto this drug any
Hi currently sitting in hospital male aged 64 Llifelong Crohn's have blood transfusions, iron infusions and B12 injections. Previously had Neutropenic sepsis mesalazine killed my white blood cells. Anyone using vedolizumab how is it going? Any info! Once my issues calm moving onto this drug any
Easby
in
Crohn's and Colitis Support
2 years ago
Vedolizumab
Has anyone been on this . and has it worked how quickly does it work , and can I go on holiday to a hot country. Bit worried they want me have to infusion before I go, is there anyone that can give a bit of advice on this please . Thankyou
Has anyone been on this . and has it worked how quickly does it work , and can I go on holiday to a hot country. Bit worried they want me have to infusion before I go, is there anyone that can give a bit of advice on this please . Thankyou
Bluegirl1948
in
Crohn's and Colitis Support
2 years ago
How were you diagnosed?
I was given
mepolizumab
- sadly it did not have the hoped for results. I was switched to fasenra which showed promise - you are given larger doses initially - when dropped to two monthly once again things fell away. Xolair is next on the list.
I was given
mepolizumab
- sadly it did not have the hoped for results. I was switched to fasenra which showed promise - you are given larger doses initially - when dropped to two monthly once again things fell away. Xolair is next on the list.
Madbiker1
in
Vasculitis UK
3 years ago
Self injection query
Can anyone who is currently on
Mepolizumab
or Benralizumab who are self-administering help? My wife is on Benra and has to attend the local hospital every other month to be handed the self injection pen by a nurse to administer the dose herself.
Can anyone who is currently on
Mepolizumab
or Benralizumab who are self-administering help? My wife is on Benra and has to attend the local hospital every other month to be handed the self injection pen by a nurse to administer the dose herself.
Riff1954
in
Vasculitis UK
3 years ago
Vedolizumab and back pain
Hi guys. Has anyone else experienced severe lower back pain on Vedolizumab?? I’m just wanting to make sure it’s normal sometimes it feels so stiff that I can’t move
Hi guys. Has anyone else experienced severe lower back pain on Vedolizumab?? I’m just wanting to make sure it’s normal sometimes it feels so stiff that I can’t move
saamsaamxx
in
Crohn's and Colitis Support
3 years ago
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