VM & postcode lottery IRO understanding/treatment ...??

[sophiesicknote]

Is anyone interested, like me, in gathering data IRO postcode, spread/intensity of VM, and level of support?? At time and post diagnosis?

I have taken part in questionnaires, read blogs and answered queries/concerns but never have had hard raw facts given or shared.. I would really like to work with a few like minded people to gather data from past/present VM sufferers...this would be confidential..and just on location/severity/support and then results shared as I believe there is a postcode lottery with identification/understanding and would like to prove/disprove. . There is a lot on BM, rightly so, but I personally would like to investigate this further without prejudice.... Interested?.