X?

[Hann19]

After VM does anyone keep sweating in their sleep ?

Did any body have a pind and needles sensation as I have that in my hands and my lower body ?

X

[Floodle]

Hi

I only get painful pins and needles in my hands at night. Numb patches on my face when tired. Weird numb sensations down my right legs.

I have had all sorts of tests ( it’s not carpel tunnel) seen 4 neurologists locally Kent UK and have now been referred to Kings in London and am waiting for results a lot of unusual blood tests and a brain MRI.

I had BM in 2014 and all symptoms have been since then. No one seems to know at lot about the brain damage caused by meningitis.

Incidentally I have just started getting warm body sensations too( not menopausal)

Reading other posts meningitis appears to be a very personal affair with everyone suffering in different ways.

X

[kaibear]

yes night sweats .. i also had tingling and warm sensations too. i was told it was nerves regenerating. i dont get it as much anymore now. but my nose has been tingly for a month now. i had vm meningitis june 2019.

[Hann19 in reply to kaibear]

Hi x

I had vm August was discharged from hospital last Monday 9 staying in for 3weeks. I couldn’t feel anything from my under body down wards than I started walking again. Effected bits of my body and my hands they feel so strange now

[kaibear in reply to Hann19]

ok it will get better.. i couldn't really walk at first either and was very dizzy.. so three months post im riding bike, dancing around w kids, all the usual.. keep using your leg muscles but start off slowly and dont over due yourself. i still have a hard time climbing stairs but i guess its getting easier. you will get there, think positive too.

[kaibear in reply to Hann19]

my body was very weak also from hands to feet

[Fiona-bennet]

Hey! I do get the sweating at night and the pins and needles but I also found I got a loss of circulation to my fingers and now they are always cold. I have found sleeping with my feet and arms out of my blankets regardless of temperature helps

[Hann19 in reply to Fiona-bennet]

Bless you x thankyou x I still can’t feel bits of my lower body it’s like we say pins and needles sensation. Xxx

[Fiona-bennet in reply to Hann19]

When I got BM I actually started getting paralysis down one side of my body and it took a few months but it did mostly come back.

When you are sick in one part of your body your brain attacks that part to make it better, unfortunately when your brain is the part that is sick it starts attacking itself and can be attacking parts that aren’t infection.

It’s taken me years to get what I have back but I didn’t get everything and unfortunately the pins and needles, the excessive sweating at night, the cold fingers, loss of peripheral it’s all the stuff that I haven’t been able to regain.

I went and saw a new surgeon yesterday and he said it’s gotten to a point that whatever I don’t have chances are I’m not going to get it but now I need to work in ways to make these quirks I didn’t have before apart of my life now and ways to make it manageable

[MinkyD]

My daughter had BM with septicaemia almost 3 years ago when she was 22.

Since she’s had left sided weakness, pain, hearing and sight issues but was doing really well until a few weeks ago wen she started to get pins and needles in her hands and feet (in the first episode this progressed up her limbs), pressure in her head and feeling breathless.

She was sent to an appointment with a neurologist, who said the most lightly cause was a virus, and because her Meningitis was recent (yes 3 years ago is recent apparently) her reaction to infections will be like this, because Meningitis has s such a huge affect on the brain.

She’s had another episode since, although I don’t think she really recovered from the first one.

The Neurologist and GP seem puzzled at the symptoms. Her bloods were all ok (slightly low B12). It’s interesting to hear that others have experienced pins and needles too when the dr’s are puzzled.

[Hann19 in reply to MinkyD]

That’s crazy 3 years ago is recent. I asked my GP for some pain relief that wouldn’t make me feel sleepy as I have children to look after.

She told me to take paracetamol and co codamal (co codamal has the sleepy side effect) as well all no. I couldn’t believe it. These professionals don’t seem to no much about meningitis and the effects do they xx

[MinkyD]

No they don’t. There don’t seem to be any specialists for the after effects of meningitis.

[Hann19]

I no and nobody seems to understand xxx

[Bverdi28]

Yes!!

A lot

[Tonka3Tika]

I am 54. I had bacterial meningitis when i was 12. I have been getting the pins and needles, numbness, night sweats again since my fifties. It went away in my late twenties. I wonder if it's still post meningitis symptoms returned. My primary doctor has no answers. My blood tests look good.

Maybe I have to get a neurologist again.

[Hann19 in reply to Tonka3Tika]

Since I was discharged on the 9th September this year I was told I would see a neurologist in 4weeks from that date. But got a letter recently to say my app is on the 22 November. I was very cross but that is the NHS these days. You definitely should try and see one. I have to say some of the these symptoms have improved but not 100% . X