After effect: My VM started with a pain in my... - Meningitis Now

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After effect

Rushdog2 profile image
7 Replies

My VM started with a pain in my head at the base my skull by my neck.

It progressed to normal vm symptoms but I couldn’t talk . Couldn’t form words and had weakness down my left side.

Docs wasn’t sure if vm or stroke had a spinal tap vm diagnosed.

19 years on still have bouts of viral fatigue where I’m wiped out for about a month.

Always seasonal for some reason .

Anyone else left with strange after affects ?

I

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Rushdog2
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OfAllTheLuck profile image
OfAllTheLuck

Hi Rushdog2,

I have Mollaret's meningitis. After six bouts in seven years, I am positive there are after effects. I have experience fatigue and have had issues with disequilibrium for the past two years.

But for me, that's not the worst part. It's the not knowing that troubles me. As in not knowing when I will experience another bout of meningitis and / or if the next bout will lead to additional nerve damage.

Rushdog2 profile image
Rushdog2 in reply toOfAllTheLuck

Hi There,

Strangely my bouts of fatigue seems to

Be seasonal.

Always around December time or February/March time.

I am currently in recovery after having a bout that started 3 weeks ago.

It’s really hard as the doctors can’t explain why I get these episodes and it’s also very hard to explain to other people.

OfAllTheLuck profile image
OfAllTheLuck in reply toRushdog2

It's frustrating when doctors can't find a cause for what ails us. Though I imagine it's likely frustrating for them as well.

Does anything help ease the fatigue? How long do the bouts last?

Rushdog2 profile image
Rushdog2 in reply toOfAllTheLuck

They usually last around 4 weeks but can take 5-6 to get back to full strength.

Rowi profile image
Rowi in reply toRushdog2

Is it just the fatigue? Have you ever had an MRI or a lumbar puncture during these bouts of fatigue?

Rushdog2 profile image
Rushdog2 in reply toRowi

No the Dr just seems to let me go through these episodes as after the4-6 weeks I’m back to normal ... untill the next time !

Rowi profile image
Rowi in reply toRushdog2

Thanks for letting me know. People here have made suggestions about boosting immunity: lysine, astragalus, olive leaf, red algae. There are many other things for that. I've tried some. Best of luck.

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