I was diagnosed in July and am finding life such a struggle.
I have recently gone back to work which is meant to be part time but they seem to be asking more and more of me. At first I was glad to go back, a little bit of normality and I for a few hours a day I could just about battle through the pains and pretend it was okay. I have come to terms with the fact that this was the wrong thing to do. Faking being okay isn’t going to make it okay. It has actually made it much worse.
Battling symptoms that no one can see is tough on its own, everyone already thinks you’re okay and it’s hard for people to understand something they can’t see. I have found that because it’s viral meningitis i have suffered with people assume it’s not bad as you can’t die from this or it doesn’t affect your life the same way. I am grateful that it isn’t as serious as the others, but that doesn’t mean it’s not serious at all. It can be so disheartening and lonely trying to manage this illness and the after affects. I am married and my husband is now very supportive but i know it’s a struggle for him too. We each have good days and bad days, but those bad days are locked away in my body - no one can see them.
If I could give any advice to others struggling it’s be vocal about how you’re feeling and what your experiencing. It’s not going to physically improve anything but it will help those around you support you when they may not have been able to before.
I made this mistake with work and now it’s harder for them to understand why this is happening .
Every day I struggle with my speech, the processing of information, the constant throb in my head and the ringing in my ears. I am exhausted all the time and yet often can’t sleep because of the above. The speech is worse when I am tired so it’s like living in a constant vicious lonely cycle.
I have been referred to neurology but am unable to get an appointment until Feb next year.
I feel I have let myself down and am even lower because of that.
I hope anyone reading this takes my comments on board and gives returning to work some real thought. What ever your situation is, nothing is more important than your health and the people around you that love you will understand that and support you.
I am hoping my recovery won’t take as long as some of yours has and wishing anyone going through something similar a fast recovery too. You’re not alone