I had bacterial meningitis in Dec 2015. I h... - Meningitis Now

Meningitis Now

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I had bacterial meningitis in Dec 2015. I have made quite a good recovery but still suffering with the after effects.

Karenlsmith profile image
9 Replies

My head feels like I have a jelly in it and feels heavy and moves about when I walk! I can’t turn too quick as it can throw me off balance. Does anyone else suffer with this?

Thanks

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Karenlsmith profile image
Karenlsmith
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9 Replies
hawkeye777 profile image
hawkeye777

Hi, have you tried vestibular rehabilitation therapy? It has helped me significantly though I still have a way to go. I had BM in Feb this year and don't expect the fog in my head to clear for several months yet but I am assured it will go. I also recently had an MRI head scan, which included an inner ear scan, all of which fortunately showed that there was nothing else going on. God luck, I know it's difficult.

Karenlsmith profile image
Karenlsmith in reply tohawkeye777

Thanks for you reply, have have had neuro physio which consisted of eye movement exercises head and neck exercises but no improvement im afraid. Yes I get the brain fog too and suffer with axiety, its really getting me down. I just want a answer to whats causing this and if anything can be done. I have thought about asking to see a neurologist and feel I need a brain scan to rule out anything else. it has affected my mental health, which if I can get to the bottom of it my mental health will improve. I contacted bm through an inner ear infection. Hope all goes well for you too, they say time is the greatest healer but I don't think I am going to improve anymore! :-(

Runnerma profile image
Runnerma

Hi! I also had bacterial meningitis in Dec 2015. I have the same symptoms with pressure sensation, that comes & goes. The exercises do help, went to physical therapy for 9 weeks & given instructions to do them daily. Good luck!

Karenlsmith profile image
Karenlsmith in reply toRunnerma

Thanks for your reply, think I need to carry on with exercises, there is no quick fix is there :-(

Karenlsmith profile image
Karenlsmith in reply toKarenlsmith

has it helped the feeling in your head doing the exercises, did they say what was causing it?

Runnerma profile image
Runnerma in reply toKarenlsmith

I have been told so many different causes so I am not sure. PT told me that brain is recovering from meningitis similar to having a stroke & needs to be trained, which seems plausible. I just want to feel normal again but I think that I just need to feel special & blessed that I have survived! Take care of yourself!

Karenlsmith profile image
Karenlsmith in reply toRunnerma

Yes I know what you mean I am so grateful I am still here but I don’t feel the same person ! I am constantly aware of how I feel all the time my head feels so weird and heavy . Hope you make a good recovery too. Thanks for your comments feels comforting to know I am not alone.

Sophxo75 profile image
Sophxo75

Hi Karen,

I am suffering with this so severe at the moment. I’ve had a diagnoses of vertigo but I’m just not convinced it’s that as I’ve been ill for 3 weeks now. Severe fatigue, bad dizziness, concentration problems, weakness and headaches that can come on suddenly.

Thinking of going to A&E to sort this now. Feeling terribly poorly. Is this similar to you?

Runnerma profile image
Runnerma

Hi! Just thought I would check & see how you are doing. Hope you are doing better!

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