Visual processing fatigue

[Barbaustralia]

Hi

I went to work today and can't process bright light have to wear sunglssses now feel exhausted

I am loosing hope

Four months of hell

I was werse but still so hard

I see all lights as bright

Feels awful

Anyone relate??

[IRHONDA]

yep ... my daughter used to say to me Mum take your glasses off we are in the shops now, but I couldn't stand those bright lights in the shopping centre... it does improve though I must admit but it does take some time .. but it will never fully go .... you will learn to live with it ... and wear your glasses more actually the lights in the cars in the night really hurt my eyes...

[Barbaustralia in reply to IRHONDA]

My distance vision has deteriorated and so have glasses and wrap around then reading glasses and a hat

Pps ask questions and comment but just say have migraines

How long did it take you?

I had vm

Remember when photophobia happened was sweating and running up hills when usually just slowly walk very strange

I remember exact car place moment day and time I noticed the world bright

[Juliano_Martins]

Hi there.

Yes, actually yesterday I was at work and suddenly my vision became blurry. Was like seeing flashing lights (these lights had a weird crescent moon shape). It was gone after 20 minutes but then i started habing a huge pain at the back of my eyes. Went to a GP and was told to take Advil for the pain. It's improved but I'm still concerned. Sydney GPs seem they dont care much....

[Barbaustralia in reply to Juliano_Martins]

Yep I'm in sydney too and they do not seem tocare and r clueless is my experience

[Barbaustralia in reply to Barbaustralia]

They know very little on treatment of this light sensitive like I have too

[Barbaustralia in reply to Barbaustralia]

They will just send u for standardeye tests or neurological

[Starry]

I massively relate. I struggle a lot with bright or flashing lights of all types. I even watch TV with sunglasses on.

My neuro sensitivity is really bad and along with that and my ME symptoms I'm unable to return to work atm, possibly permanently.

I am starting to find meditation apps like calm help damp down neuro overload a bit through the dayand extend my functioning time a bit. Just a thought though as everyone is unique and different. Feel free to ignore.

[IRHONDA in reply to Starry]

we all go thru very similar side effects .. we all learn to do things to try to conquer them and that's what all these posts do we all try and help each other no matter how small it is maybe it can help one of us ... we need to share as no one understands us that havnt had this hideous disease the outside world just don't know what we go thru ...

[IRHONDA]

the worst I hate is this constant pressure on the top of my head its there right now and im so over it .... trying to stay calm need to try and learn to relax and meditate ... the cranial massage was good but its right up the central coast I cant drive 3hrs to get there and back it wouldn't be worth it with all the stress of driving there and back ... she was good though

[IRHONDA]

oh dear Barb.... take it easy girl, you are over the worst it will get less than it is now its still early days 4 months give it a year and then what eve yr like then will probably be the norm for you then...mine I can put up with as normal now....take care don't give in don't get down atleast the pain has gone that is definitely the worst although the pain in the eyes isn't good I have that now because of getting over a mini bout its a sickly pain and almost hurts when you blink hey? .... it will pass please be strong x

[Barbaustralia]

Thankyou Rhonda

I used to live on central coast love it up there now in sydney

Your welcome to message me if u want my private number

Yeah used to travel on trains but now awful flash flash

Today stuck in bed exhausted and doing rounds of doctors next week

Never helpful

Who do u c for cranial 💆🏻 massage

🙏

[Barbaustralia]

Yeah that sick feeling awful

Pps tell me how gaunt I look

Always been an independent person now like disabled

Pps don't c what I see big blurs of light

Ahhh

Rhonda are you up past Gosford

Now can't even get on 🚂

❤️️

[Barbaustralia]

Thinking of having laser surgery but they say eyes normal for age so weird it's in brain I suppose

Anyone else had laser eye surgery

[DebDog]

Bright lights do irritate your eyes and can cause headaches but I found with time it got better. Get some glasses that you can wear pretty much all the time and it won’t be as noticeable to your family & friends when they are with you. Fluorescent lights are the worse!

[Barbaustralia in reply to DebDog]

What glasses do u wear as my day glasses don't work at night as Polaroid

I don't understand why so bright and they say eye test fine except when light bright at either side of eye chart then blur

I am so sick of doctors shining light in eyes and saying normal when i am crying from pain

[Barbaustralia]

I get depressed now the glare causes me to feel unhappy 😔 anyone else relate???