Meningitis Now
4,309 members • 1,426 posts

Worried mum🤔

Hi guys just looking for a little advice I'm a little concerned about my daughter she's 7 she had menginnococcal septicaemia group B when she was 2 years 10 months, but these last few months, her emotional behaviour and memory lately have been rather extreme on both ends of the scale.

I was just wondering if anyone is noticing this kind of after effects and what to do? I've not had any aftercare since Megan first had it, no follow ups or anything unsure if this is something that should have been done or not her school have also picked up she's needing learning support and social skills and they are hopefully going to do testing for and ABI in the new school year, but outside of that I'm a little out of my depth xx

6 Replies
oldest • newest

I've only had viral meningitis but have a miss who has just turned 8 and one that has just turned 6, it seems that around that age girls go through a big emotional changes, my girls have never had meningitis but are very emotional. Maybe a check up at the doctor would be a good idea and maybe try and get a video of when she is extremely emotional just so you can show the doctor what you are talking about (i know sometimes they like to brush things off as normal) forgetfulness is another thing that seems to happen around this age but not extreme though. It is great that her school has noticed these things as well. All the best xxx and hopefully you can get the testing she needs.

Reply

If you have a local HEADWAY group, contact them for help, if not, try the head office for help.

1 like
Reply

Thank you for your reply, I have two girls myself of 7 & 5 the reasons I'm wondering if there is any after effects is because especially at the moment my 5 year olds emotional maturity is becoming more advanced than my 7 year olds it's like she's regressed a few years and is struggling to handle her emotions and understanding them she's really struggling with, the school have noticed what I mean, it's very difficult to explain in a blog why I think her coginitive and emotional behaviours are different, I've had this conversation a million times of people telling me it's just her age & I'm over thinking it and if I'm honest I really wish it is just that. upon investigation I found some information on ABI in children which explain a lot of my daughters behaviours and the school are going to arrange testing for it, I was wondering if anyone else was having the same thoughts, because believe me when i found the information I cried with relief that I'm not crazy and it's not all in my head I was just hoping I wasn't on my own with this, but again thank you for you reply 😊

Reply

My daughter had meningitis septicaemia aged 2 and they told us she wouldnt last the night as they were having to pump her with pencillin which she was allergic to. Our Prayers were answered and she survived, after 6 months she was declared fit and healthy after a heart murmur scare...however over the years her dad has often said that the hospital gave us back a different child. Her behaviour has been bizarre, sometimes challenging but we had nothing to compare it too. I always put it down to the fact that we were so grateful that she was here that we spoilt her too much. But now at the age of 15 she is suffering with severe anxiety and paranoia cannot attend school, she cant concentrate so her school worked suffered and her emotional well being is really worrying. I have referred her to our local mental health team but help don't come quick enough so im doing my own research trying to find a reason and an explanation...Home life is often unbearable at reaches crisis point on occasions with her threatening to take her own life. Her younger sister is 11 and has accepted her sisters controlling and bullying behaviour all her life but now realises it is wrong and in her own words says she is a crazy lady!. I will print off what I have found and show it to the professionals who have not asked about any medical history yet...

Reply

Slightly different but I was referred to Headway after I had meningococcal meningitis. They were so helpful and even offered to see my partner should he so wish. I also had a brain scan to show any damage . I would definitely recommend contacting Headway. Good luck.

1 like
Reply

The cognitive after effects of Meningitis sometimes don't become apparent until children have started school and then as the learning expectations start to increase. So that is often around school year 2-3 because e.g in reception its lots of play and learning letters, numbers and words etc. Perhaps there is a link between her struggling to manage things and which she is now realizing herself, and that's making her more emotional. Could her increased emotions be linked to frustration that she can't do something and so gets upset with herself? That's great if some ED psych testing is going to be done. I think it would have been difficult to establish these cognitive problems before, unless they were severe with a very obvious impact on her daily living skills. With babies and infants that have meningitis it is often wait and see as to whether it has caused an abi. Plus there brains are still developing. I don't think there has been a failure in follow up by hospital or by the school because it wouldn't have been apparent before and some children who have meningitis do recover without ongoing difficulties. It was a situation of wait and see and now it is clear she has some cognitive difficulties the right thing is happening to get that investigated to establish what support she might need. Physical problem are obvious so much easier to identify straight away.

Best wishes

1 like
Reply

You may also like...