My daughter was just diagnosed with VM on Wednesday after being admitted to the hospital.
She's a Mom with a family like most a wonderful job that she loves.
I'm very disturbed how her conditions & symptoms are still surfacing while she's in the hospital. I do understand that it's only been a few days since being admitted . However what disturbs me the most is how the medical community treat VM.
From reading through medical journal's and Google which has become mom's best friend.. I'm totally broken hearted reading that this could cause long term effects in her brain, but then there's confusing dialogue stating that there's really no specific cure just for the patient to continue to take pain medicine stay rested, no stress..but doesn't regard VM as any disabling disease. As I read through some of the other comments in writings in the VM community here I see where others are still suffering after yrs of being diagnosed.
Shame on the medical community for not educating or helping the one's suffering from it, and also their families. I'm at wits end, because my daughter is being treated as if her condition isn't anything to worry about. She may have had all the symptoms for over a year & misdiagnosed every time we rushed her to the ER. I'm just happy I've found this community where everyone understands. Just want answers how to care for her after she's discharged from the hospital. They don't offer after care & as I stated earlier the doctors and medical staff show no regards as to how long she may have had VM, & the effects she's experiencing now while being hospitalized.