Wrote it all down as i forget everything but I've still forgot some stuff so after my First checkup im just gonna go over a few things the "infectious diseases" doctor has said;
She said i had bacterial meningitis which probably started in the middle ear and because its closely connected to the part of the head where the meninges are thats where it would of turned into full blown meningitis.
She said most people get a infection in the ear and it will go and doesn't turn into something more dangerous.
She said most of her meningitis cases are kids which she sees often but very rare in adults and she wants me to understand how sick i was.
She said i was seriously ill but as soon as they gave me the right drugs, machines etc my body slowly but gradually started to recover.
She said shes not sure that the fluid/air has gone from my head/spine etc but its something they usually let go by itself and after i see the ENT specialist anything else can be gone over then.
Shes not happy that the ENT (ear,nose &throat) specialist/doctor hasn't followed up yet and seems to think a lot of my problems/questions are more to do with them and so has contacted them so I'm waiting on them still.
Ive had a scan on my lungs which looked completely clear of any infection/fluid and i got shown two previous scans and it shows both lungs collapsed and bar a tiny bit at the top of each lung they were both full of fluid/infected.
Ive had my height and weight measured to discuss on the next appointment.
She said my crp count which is from bloods taken shows infection/inflammation in your body and it was in the red most of the time it was 100 at one point which is to high in itself but then it went to 400hundred and sumat which was wen i was critical and slowly wen down about a 100 a week until it was 85 then finally on leaving hospital it went out of the red and was just 4.
Ive had a blood test to check everything's still ok and that my crp count is still on 4 which will be followed up on my next appointment with the infectious diseases doctor.
She wants me to not deprive myself and make sure i I'm taking tablets for my head, neck, ear pain etc which might be for another year but she thinks theyll eventually subside.
She said if i do something to much/walk to far and get pains/breathless/dizzy/unbalanced etc then I'm to do half that and keep trying,
She said it will be difficult as my body has been through a lot especially from being in ICU as when your in that department because of how critical you are you have to be put through things that are so invasive and takes a lot out of you/your body,
So it will take a while and also because of not seeing the ENT doctor yet it may have a lot more to do with that, thats stopping me from doing things and so it will be hard to do enough as to try and get some muscle and strength back but to not overdo it as to not rest my body/make it worse/become fatigued.
The only thing now is ive been told today my company sick pay runs out and with all my side effects and weakness not getting better any time soon im not going to be able to pay all my bills :/
Im getting so stressed now; im trying to get better and am literally unable to walk far on my own so im totally lost on what i can do... Has anyone else come across this or know of any support advice that there is?