Ok it has happened again. I moved to a new community, and wanted to get established with a Physician. My headaches and neck / back ache and the burning feeling has returned. Upon meeting the doctor I explained I have Mollaretts meningitis and he said ( what is that). I explained it is reoccurring meningitis. He immediately said "I've never heard of that, viral meningitis, is not serious. I then pulled out my ipad and showed him the stories on here, from meningitis now, and asked him if he didn't think, that many of us thought it wasn't serious. I had copies if 8 of the 17 hospital admissions and for his convenance I had highlighted the elevated WBC, spinal tap studies, and my ICU admissions. He then said, let me look it up on his lap top, and commented, yeah here it is. At that point he said, you need a specialist, and now I am waiting to get an appointment with an infectious disease doctor.
I left frustrated and angry, that I had to teach him, about the condition, yet I have to wait to be seen yet another doctor, for what he initially said was not a serious condition. Meanwhile the headaches are there along with the burning in my back and neck, nausea and general feeling of how much worse is it going to get? Trying to increase acyclovir and rest as much as possible while I wait.