I apologise in advance for this complicated posting. I am looking for answers, rather than sympathy.
After 3 to 4 days of a headache gradually getting worse, my face drooping completely on the right side in the morning of day 4, on day 5 I contacted the GP surgery. The concern was, at age 67, I had suffered a stroke (I was 99.99% certain i hadn't) so was advised to call 999. Following the arrival of 3 paramedics, and about 25 mins of various questions, i was taken to the local hospital, where i was eventually admitted from A & E on 1 Jun. CAT scan was clear for a stroke, and a chest infection ruled out, with a chest Xray, as the source of high temperature (I wasn't even aware of this, i just felt lousy). 2 IV medications were started, which I later learnt were one each for bacterial and viral meningitis. On 2 Jun, i had a lumbar puncture (attempt 5 was successful, the main problem being scar tissue from 3 earlier spinal operations) and it was thought the CSF was clear, but the next day the report was it contained some protein cells. BM med was stopped, VM IV continued, but when transferred to a ward from the Observation Ward late evening, it changed to oral antiviral next morning. My discharge summary gave diagnoses of viral meningitis, labyrinthitis and Bell's Palsy (BP) (grade 5 out of 6). I was to be discharged late afternoon on 5 Jun. After several hours of (their) messing around, the microbiology registrar cancelled the discharge just as i was leaving. The virus causing my problems was varicella zoster (chicken pox) so i had to have IV antiviral for 10 days. I came home on the 8th Jun and community nurses completed the course of aciclovar three times a day until Fri morning. I have had no follow up OP. It seems the consensus is having had several high dose steroid courses in the previous 5 months, not actually ever getting off completely, for lichen planus, this was enough to reduce my immunity to a low level (i have been on immunesuppressants for 13 years for myasthenia MG). At no stage was i told the VZV dormant in my body since a 5 year-old, and abdominal shingles about 10 years ago, could resurrect itself and cause VM, or the other 2 recent conditions. Does anyone know how common this is? I'd always fought against steroids for the MG, as i considered them a filthy drug with numerous side effects, and my neurologist respected my decision. Ironically because of the BP, I had to have 10 days of 60mg prednisolone from 4 Jun! My face has amost recoveted, but i still have an almost permanent headache, which varies in severity, and am not sleeping properly, and constantly tired. I had to resort to a dictionary today, unheard of usually, etc Will all/some/none of this improve? I did have a brain/head MRI in mid-July but don't know the result despite several requests and using the PALS service who were useless! I'm now trying to view all my hospital records, as having requested a copy of the recent CAT and MRI scans ( as well as previous ones, just for comparison), I'm told they will be encrypted!!! I thought I'd take them to my next MG OP appointment.
i just want to get back to my previous health and mobility, which although compromised due to pre-existing conditions, i knew how to manage with planning and pacing.
Thanks for reading.