New member - meningioma advice welcome - Meningioma Support

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New member - meningioma advice welcome

burns1970 profile image
4 Replies

Its my first post here, recently diagnosed with a meningioma with calcification over right anterior and superior frontal convexity. 1 cm so quite small. Had ongoing vertigo and worsening headaches and hearing loss in one side. My case has just been passed from ENT to a Neurosurgeon and I await their response. Like to hear from anyone with similar experience and any idea of outcomes I may have.

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burns1970 profile image
burns1970
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4 Replies
idi75 profile image
idi75

I was found by chance to have a similar sized meningioma with some calcification in a similar position about 3 years ago. As I had no symptoms no further action was recommended and a recent scan found no change and I have been discharged. Try not to worry, difficult I know, but a small calcified meningioma on a frontal lobe often remains dormant.

burns1970 profile image
burns1970 in reply to idi75

Thanks for your message, that sounds very positive and encouraging. It's all a bit unknown to me at the moment. Glad your well enough to be discharged. Hopefully same will happen to me. Many thanks for taking the time.

OneNonly69 profile image
OneNonly69

I had a massive meningioma size of a grapefruit...loss the while left side of my body... Control of bladder and bowels and was completely delusional.headaches so severe had to pack body down with ice everyday finally showering one day.fell hit my head ambulance picked me up took me straight to Loma linda...I was also pregnant 8 months so they took out baby Leia early removed the tumor 95 percent put plates In my head and me and Leia are perfect today..you will def be fine ..learned how to walk again ya I forget here and there alot I get checked every year for the rest of my life but it wasn't cancerous and Ido say huh alot when talking I also have floaters in my eyes but hey I'm alive and ur gona be great...all glory and honor to GOD and Dr de Los Reyes he's amazing

Ladybex profile image
Ladybex in reply to OneNonly69

🙏💙

Take care 😊

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