Parietal Meningioma

[dancinglover]

diagnosed with left Parietal Meningioma years back, but has grown since to 3-4 cms with poss bleeding. Some symptoms but Not much .

Anyone out there with similar situation?

[Prairiehill]

I just had a 3 cm left parietal meningioma removed last week. I had minor right side numbness/tingling symptoms for the 5 yrs since diagnosis. They didn't last long and I figured maybe "I can live with it" given the terrifying aspect of surgery. Then a month ago without warning I had a major seizure that left me unconscious and in an ER. My advice, don't assume things won't change, get brave and have it out.

[dancinglover in reply to Prairiehill]

Thank you for your responce. Much appreciated. May i ask who your sugeon was and how it went.

[Prairiehill in reply to dancinglover]

Dr. Mustafa Baskaya is Turkish with an international reputation. His practice is based at the University of Wisconsin-Madison, U.S. facebook.com/DrBaskaya/

It was a brutal experience but went off without a hitch. He removed 100% of the tumor with zero collateral damage. Aside from the effects of a heavy dose of steroids and anti-seizure drugs I am recovering fast and its only day 8.

[dancinglover in reply to Prairiehill]

Dear Prairiehill. Thank you very much much for sharing your story with me. Makes me feel a lot calmer. May I ask what you mean by "brutal experience"? and do please continue to share as much as you feel able to. I presume you are in praise of your surgeon, and I hope I will find someone at that level in London or near Southern Spain where I live.

[Prairiehill]

Perhaps I shouldn’t have used the word brutal. It was a frightening and painful 48 hours following the 7 hour surgery, beginning in the recovery room where I was fading in and out of consciousness attempting to move my right extremities and respond to voice commands from the nurses. It’s a real shock to wake up with close to 10 lines and tubes connected to your body including catheters, arterial blood pressure lines, IV lines, breathing tubes, etc. Absolutely no sleeping was possible until I was unconnected and moved out of the ICU into a standard hospital room. But 48 hrs of misery is a small price for a new lease on life.

[dancinglover]

did not realise one would be AWAKE !is that the usual situation? thought it would be ... go to sleep and wake up done..

[dancinglover]

I am looking for Neurosurgeon recommendations in South East England or Southern Spain. I have had some recommendations and hoping to narrow it down.