Low Day

[Paper2021]

Nearly one year post op. I have had a turbulent couple of years. Just after my op my social circle of friends including my Sister In Law decided to call me a liar and haven’t spoken to me since Feb 12 last year. I’m lucky I’m here and I still have a good memory. I still have other symptoms. I’m finding it hard to move on from the so called friends (over 20 years) and healing from my surgery. I know there is no quick fix. I also know I may never be how I once was. I just want to feel like I have a life I can enjoy. I still can’t drive. The last time I drove was Nov 2021. Hopefully that will change this year. I’m having one of my tearful days today and feel rubbish about everything. Anyone else?

[Becky130777]

Hello really sorry to hear you are going through a tough time. I am only just at the start of my diagnosis on watch and wait and appointment with neurosurgeon not until March. Do you mind me asking what symptoms you are still struggling with? Is it fatigue or headaches or more difficult problems. Are you a member of the Facebook page I have been finding that very helpful and the members on there are very supportive, it is called : Meningioma support group - the brain tumour charity. Do you live with family who can support you. Wishing you all the best with your recovery. It there any groups you could join to make new friends in your area maybe?

[Paper2021 in reply to Becky130777]

Hi Becky sorry for the delayed reply. I’m still here. I’m finding Fatugue really hard. Yesterday I was asleep 2 hours after I got out of bed. I had been out the night before for 1.5 hours but it really knocked me out. It’s just so frustrating. I’m only getting up to 3hours throughout the day to get things done.

I don’t get many headaches now. I had a few after surgery but I didn’t need pain killers for them .

I’m on two Facebook groups for Meningioma.

I live with my husband and two young adult kids

We have a fairly local Brain Tumour charity but I haven’t wanted to go yet. I think Headway is not far from me so I’ll look into that . I’m not very confident with my walking and balance in other places so don’t venture out without my husband

How are you doing?

[Gigiwith7]

Sounds to me like they weren't friends at all. Forget them. Focus on getting stronger mentally, physically and spiritually. You have gone through a very life changing event. Don't focus on anything negative, stay positive, make new friends. God speed.

[Shade1]

yeah I can understand the way you feel about this surgery that’s come to change quite a few things in our lives expecialy a once independent and agile woman like me ,I was operated last year December 20th but unfortunately been in and out of the hospital since January 20th because the emergency services here in France wouldn’t believe that I honestly need help with my face and head still swollen with headaches and I finally checked in 29th of January with an infection on the right frontal lobe that was filled with pulse and I had to be operated again 😭I thought I had escaped from the bsss of this brain tumour but here Iam againsurgeuo back to the hospital and feeling overwhelmed and sad that I just can’t participate in the little things whiny children or take a bike nd roughened up nd down my neighbourhood like I used to,I still haven’t seen my surgeon since the 29th he operated me again to at least reassure me of results of what was done again this time 🥲it’s very tiring honestly and I’m almost loosing my mind here at the hospital ,the nasty headache is something no one should go through 😭but I need to hang in there for my beautiful kids at least

[Paper2021 in reply to Shade1]

Hi sorry for very delayed reply. How are you doing now? I hope things have settled down for you.