Meningioma

[adinkata84]

Hello, I would be happy if you could share your experience with the treatment of meningioma (grade 1).

Is there a delay the tumour after radiotherapy etc..

[jasonoliv34]

HiPlease read my account at amazon.co.uk/gp/aw/d/B08DDY...

Be blessed.

Cheers, Jay

[adinkata84 in reply to jasonoliv34]

Thank you.I sow the book and if I found how i will get it..

[jasonoliv34 in reply to adinkata84]

It's available as a Paperback and Ebook (and soon to be an Audiobook), available from Amazon in any region.

Cheers, Jay

[adinkata84 in reply to jasonoliv34]

ok.But now we want to find a few. second medical opinion what to do.Last week, to my father was recommended radiotherapy,(he already have to surgery )

they was told that it is a one-time treatment. But I would like to get more opinions from different places in the world, whether now or to wait a little longer.

That's why I wanted to ask if someone in the forum can recommend hospitals and doctors who can give us more opinions based on the submitted documents that we have.

[jasonoliv34]

I can recommend Dr Watts at Addenbrookes hospital this is all detailed in my book. 👍🏻

[Carsok]

I can't recommend any doctors since I'm in the U.S. but I did have stereotactic radiation. Had a one time dose of CyberKnife. My tumor was next to the brainstem and wrapped around the trigeminal nerve and going into Meckel's and Cavernous sinus. After the radiation it did shrink a little bit and it's been 12 years. I get an MRI once a year to track it but basically since there is nothing they can do for it (was told not to operate as too much damage could be done to adjacent structures). I really didn't have any symptoms after the radiation. The radiation was outpatient and went home that afternoon. If you have any questions let me know.

[jasonoliv34]

Hi Happy to share my experience but to much to text, instead I recorded my account in a digestable book to help other sufferers; amazon.co.uk/Fightback-Brai...

Cheers, Jay

[Hidden]

I am not having any treatment for it just having another scan in april

[Xena21]

I am not receiving any treatment at present. Having annual scans and consultation with neurologist.

[Pvik]

Hello, I am in the US, and have seen a 3rd Neurosurgeon and also saw a Radio Oncologist. The 3rd one I saw was wonderful at explaining the location of my tumor and possible outcomes. I have a Parasagittal Meningioma growing slowly but it is in a dangerous location and I have a lot of symptoms from it. My last MRI the radiologist put that is is a Parafalcine Meningioma but Neurosurgeon says it is attached to my Superior Sagittal Sinus. He suggested surgery due to that it is attached to my sinus and radiosurgery will shrink it not remove it and he can remove it through surgery and then likely be done with it, where as radiation it will grow back in time and then I go through the same thing over again. He suggested having it out within a year and not to wait longer than 2 years because if I wait too long it will grow into the blood vessel and then have to repair that too. I have not scheduled anything yet for surgery but that is what I am leaning towards, I do not like the idea of radiation for myself, but that is just my opinion and the dr's as well, due to the location of my tumor. I hope you are doing okay. I am struggling with pressure in my head, bilateral tinnitus, losing hearing in my left ear (same side tumor is on), nausea, balance issues and some other things but I am also a brain injury survivor so I have that too.