Help

I desperately need help

every time my husband goes out somewhere our daughter has been constantly crying at me for nothing and she done it to me last weekend and today again and she keeps on shouting at me she is 7 years old and every time I am doing something she is constantly doing this and only to me and I don't know what I have or had done wrong she is constantly taking the bullet out of me and I have only just been diagnosed with depression and I have had no respite and I am a full-time mum and a carer to her . I am desperately need help

[Jofisher]

Hi so sorry this is happening please can I ask what your daughters difficulties are ? And is she under anyone for this ? And where do you live ?

[Hidden in reply to Jofisher]

She has hypotonia, ataxia, convergent squint and server global development delay. She is under pediatrics and live Stevenage

[Jofisher in reply to Hidden]

The carers association can be a real help to you and children's social services should also be able to help you as well. Are there no support groups for any of her conditions that you could tap into just a thought as you can often learn more from other parents more than professionals. Also speak to your local voluntary services as they will have lots of contacts that might also be helpful.

[Tracidu in reply to Hidden]

Hi , so sorry you are struggling , I dont want to presume that you havnt searched for help? you may have been in touch with Ataxia .org .uk ? , Also social services child learning disabilities team who mabe able to give some support for yourself and your little girl .

Don't know if I've been much help but I wanted to show some empathy as a carer myself.

Take care of yourself and I hope you get the help you need

[Hidden in reply to Tracidu]

Ty

[HolisticMum]

My boys are 31 and 23 now and I can honestly say if I have ever needed help, Social Services have never done anything! Usually found things on my own like other parents and groups. Maybe it's frustration of not being able to communicate her feelings? Is there anything special that she likes doing/playing that you could do especially when your husband is going out, that might take her mind off of that. Does she like playing music and dancing around and singing? My youngest can change in an instant if I sing a song. I belong to a FB group Let's Communicate, maybe some parents on there might also have ideas or there might be a link to something helpful.

I do hope you find something that can help you and her.

[Tracidu in reply to HolisticMum]

My Son is 37 , I have been dealing with social services all of his life , although they havnt given him any practical help over the years, I have had to source everything myself as others have done but they can get the direct payments to be able to get some support so I feel they are part of the process in getting help . My Adult Son has no communication, he has Severe learning disabilities and challenging behaviour , we have been through a lot in his life . , I care for him on my own since my husband died 4 years ago ,Support during lock down left us alone with no support even though I contacted SS on numerous occasions just to keep in the system and to see if they could help in any way as his mental health was suffering being at home with just me for 2 years . Daycare, Respite offered no help and social services sent out meaningful letters which were usless and meant nothing to my sons needs. , but for funding to access support its the only way to get help as far as I know? .the hard work of finding it wil be left to parents /carers .

[49Twister]

Definitely contact the CARERS Centre in your area. They can put you in contact with services that might be relevant for yourself and advice to get help regarding your daughter. Support groups of people with children with learning disabilities are a great source of information and the carers centre will be able to advise on any groups in your area. Have you spoken to the GP or the specialist she is under to get to the bottom of why she is behaving like this, there must be a reason, and I understand how draining this can be for you. The GP might be able to suggest something or possibly refer you to someone who can help. Take care