Hello Mandi73 , thanks for reaching out. It sounds like you have a huge amount to deal with right now, I can't imagine how much pressure it's putting on you.
Please give our helpline a call on 0808 808 1111 to speak to our trained advisers, they will be in the best position to give you advice and support if you need.
Love,I feel your agony and my heart,thoughts and prayers are with you in this horrible situation for you and your family.I have struggled with my own tough times (but NOTHING compared to what you are experiencing) stay as strong and resilient as you are-you are NOT defeated.
Thank u so much for that, those kind words means a lot. My sister isn't a bad person, just challenging, but , just Need more support in these tough times. Respite is a godsend, need longer.
oh gosh what a dreadful time you’re having. You certainly need to get your sister a placement asap. I do hope speaking to mencap will help you progress with that. It sounds like life is hard anyway if you work and care for your sister but with your husband being ill on top you must be at breaking point. I do hope your work is supportive and mencap can help. We had a crisis last year when my husband was ill and I was struggling with that and supporting my semi independent daughter. It made me ill with the lack of sleep and my epilepsy returned after 30 years. But it did force the hand of social services who put in place some support for my daughter. It was a tough time but it had a silver lining. I hope you have one too. Take care and come back to chat or vent if you need. Big love xxx
Just one other thing. When my daughter was in hospital during all this the sister was asking about our circumstances. After I’d explained she told me to refuse for Ella to come home until there was support in place. Best advice I ever had. Without it I’d have just tried to carry on. Maybe it’s something to consider?
Hi there Thank u for replying. I think I'm gunna have to force ther hand. Tbh, a nurse who assessed my sister did say, when she's goes into respite she's staying there till you sort summit out.Honestly, we removed her from a horrific situation. And it's like we dont get anything bk from social services.
Yes I think you do. Best advice I ever had from a health professional. Changed our lives. I was coping but obviously getting exhausted (hence the return of epilepsy). I lost my driving licence because of that and that just made things even worse. Once the system kicked in it was amazing. She stayed in respite until they had set up the PA support. It's been really good for her and for me. Good luck x
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Respite care and support
advice needed 
how do I help my daughter become independent when she doesn’t believe she needs help.Especially regarding money and hygiene.
Court of Protection
Threatened by court of protection by social worker.
