Register as a vulnerable person to get coronavirus ... - Mencap

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Register as a vulnerable person to get coronavirus support

Sarah_Mencap profile image
30 Replies

Hello

Have you seen that the Government is asking you to register with them if you are vulnerable. This will mean that you can get support during the coronavirus pandemic. For example, you’ll be able to ask for help getting deliveries of essential supplies like food.

gov.uk/coronavirus-extremel...

You can register if you have a medical condition that makes you extremely vulnerable to coronavirus. If you’re not sure whether your medical condition makes you extremely vulnerable, register anyway.

This service is free. You can register yourself, or for someone else.

Stay safe

Cheers

Sarah

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Sarah_Mencap profile image
Sarah_Mencap
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30 Replies
Freddy44 profile image
Freddy44

Thanks. I've put my name down

49Twister profile image
49Twister

Thanks Sarah

petejmarshall profile image
petejmarshall

Good morning Sarah _Mencap.

I registered last weekend and it takes about a week for it to get through to the supermarkets that you are classed as a priority customer. Mine came through today so I was able to check out my order that had been on my account with Sainsbury's for 2 weeks and got a delivery slot straight away and it's coming tomorrow .

I am just letting you and others know on how long it usually takes for your details to get on the system so that people don't worry. Everyone stay safe and well during the coronavisus outbreak and think of others and follow the government advice during this period of time it's for everyone's protection and take time to remember the people who are out there trying to protect everyone which includes all the emergency services and the NHS Doctors and nurses and all health care professionals. Help them by doing what they have told us all to do. Take care of yourselves. Peter

Sarah_Mencap profile image
Sarah_Mencap in reply to petejmarshall

Hello. thanks for letting us know that this takes a little time to come through. Let's support our wonderful NHS and the amazing people who are supporting us at this time by staying home and staying safe.

Best wishes

Sarah

Pinksy profile image
Pinksy

Hi there, I support three elderly gentlemen with learning difficulties, all over seventy in supported living 24 hour support, we cannot get a priority shopping delivery, although they cannot go out, very difficult

Pinksy

Sarah_Mencap profile image
Sarah_Mencap in reply to Pinksy

Hello Pinksy

I have asked our helpline for some advice on this, as I suspect you are not alone.

Are you, or one of their family members, able to register them as vulnerable? It does say you are register on behalf of someone else.

Best wishes

Sarah

Pinksy profile image
Pinksy in reply to Sarah_Mencap

Hi Sarah thanks for your reply, the trouble is a learning difficulty is not mentioned on the governments website as being high risk, one of my colleagues managed to get an Asda order delivered and we (support workers) are shopping in the community, not ideal, but we probably are better off than most

Kind regards

Christine

-Rich- profile image
-Rich-

I tried registering last night on my son's behalf because he has severe learning disabilities and epilepsy. However, those health problem are not listed. Yet he received a text from the GP saying he needs to self isolate for 12 weeks because he's at high risk.

petejmarshall profile image
petejmarshall in reply to -Rich-

Good morning Rich does your son have to have a flu injection every year? To save him from getting I'll on a regular basis? Then he is classed as High risk so you can register on the government site that Sarah said just tick breathing problems and give his NHS card number which everyone has who she's a Doctor or other medical professional workers then you will be added to the list ok. Let us know how you get on please. It takes about a week to get on the system with so many people registering on the site. I was passed yesterday put in my shopping order which had been waiting for over two weeks and I got it this morning and I have got a 20 year old son who has similar health issues as your son. Good luck and stay safe always. Peter

-Rich- profile image
-Rich- in reply to petejmarshall

Thanks Peter, I've registered so will see what happens. My son is also 20 and yes he is invited for a flu jab each year. Although unfortunately he wouldn't let them do it this year.

I assume the supermarkets link it to the phone number and email address that's provided to the government against those they have stored?

petejmarshall profile image
petejmarshall in reply to -Rich-

Hi Rich if you have put his National health service number into the system they link it to his medical record well the government do then pass on that he is on the register

-Rich- profile image
-Rich- in reply to petejmarshall

I completed the form and said we received a letter, although it was only a text message. A few days later a text message said if he's eligible they'll pass the details on. Sainsbury's and Asda have now both emailed to say we'll be put on the priority list for booking slots.

JanePA profile image
JanePA

Interesting, despite my daughter's extreme vulnerabilities, she doesn't fit into any of the categories on the government's list. She has a rare chromosome disorder, epilepsy, severe learning disabilities, challenging behaviour, needs 2:1 support 24/7.

petejmarshall profile image
petejmarshall in reply to JanePA

Hi Jane read my message that I sent to Rich. If your Daughter has a flu Injection every year then she is High risk look for something like the rare chromosome disorder which if my Nurse training serves me right (now Retired) is a rare form of Cancer? Good luck peter

Moram profile image
Moram

I am 68yr old caring for my 67 yr old husband with terminal liver cancer, I have copd.

petejmarshall profile image
petejmarshall in reply to Moram

HI Moram you can also register had your husband has cancer.

Moram profile image
Moram in reply to petejmarshall

How do I register?

49Twister profile image
49Twister in reply to Moram

Click on the link the Sarah has added at the top and answer the questions accordingly.

Sarah_Mencap profile image
Sarah_Mencap in reply to Moram

Hi

There is a number to call if you can't access this online - 0800 028 8327

All the best

Sarah

Soczela profile image
Soczela

Hello Sarah,

I help us much us I can.I am an experienced carer and I need my boy Back us well,however I am looking for careres for tham,so they can be supported.Just writing for someone reply.

Szilvia

petejmarshall profile image
petejmarshall in reply to Soczela

Good Morning Soczela

I think you will find it hard to find carers for your son at the present time because of the coronavisus outbreak and that we are all on lockdown in my Area we call them PA's And the one I have for my 20 year old learning difficulties and other disabilities and multi medical issues I have told him not to attend but I am still putting in his hours as my son Joe has a managed account with East Sussex county council. But if your really need a carer because you can't cope with your son's needs then I would contact your local county council or your local Disabilities team depending on how old he is if under 18 its children services at your social services department who will have an out of hours emergency number which you can call but you might have a long wait for an answer to your call as they most likely will be inundated will other calls if your son is over 18 years old it will be your local transition team in the Adult social care team who also will have an emergency out of hours service failing that you can contact NHS online services but not the NHS111 coronavisus service number or online services. I know that it's worrying for you that he might not get the help that he needs at this time. But just be there for him and show him that you love him also try and get him to do things with you if able to of course.

Like cooking or helping you to clean your home with you. If he is still at school or College they most likely would have sent him some activities to do at home like my son's college have done here in East Sussex.

Good luck in finding the help you need to care for your son. Take care. Peter

Soczela profile image
Soczela in reply to petejmarshall

Thank You Péter ,

Thanks very kind.I have my lovely neibehoor who offered help to shopping .She registered by NHS us a volunteer.I am hoping to solve my situation an have a support asap.It is difficult to say that he need Assesment done and Hope our Life is Back to normal.

Keep in touch Please.

Szilvia

Annonymouse profile image
Annonymouse

My son has cerebral palsy and epilepsy. He is invited for an annual flu jab. He has 24/7 care. Filling in the government form, I get to this question:

You’re extremely vulnerable if you:

- have had a solid organ transplant

- have any cancer and are getting chemotherapy

- have lung cancer and are getting radical radiotherapy

- have cancer of the blood or bone marrow, at any stage of treatment - for example, leukaemia, lymphoma or myeloma

- have any cancer for which you’re getting immunotherapy or other continuing antibody treatments

- have any cancer for which you’re getting a targeted treatment which can affect the immune system - for example, protein kinase inhibitors or PARP inhibitors

- have had bone marrow or stem cell transplants in the last 6 months, or are still taking immunosuppression drugs

- have a severe respiratory condition - including cystic fibrosis, severe asthma or severe COPD (Chronic Obstructive Pulmonary Disease)

- have a rare disease or inborn error of metabolism that significantly increases your risk of infection - for example SCID or homozygous sickle cell

- are getting an immunosuppression therapy that’s sufficient to significantly increase your risk of infection

- are pregnant, and have a significant congenital or acquired heart disease

I do not believe any of the categories apply. If I click the "No, I do not have one of the medical conditions on the list" button I am told he is not entitled to coronavirus support.

Do people think he is entitled to coronavirus support? If so, how do I get him registered?

petejmarshall profile image
petejmarshall in reply to Annonymouse

Good morning Annonymouse.

I have read what you said in your question. If he has to have a flu injection every year then he is entitled to extra help during the coronavisus outbreak. It also should say. If you have an illness or condition that puts them/ you at high risk then apply. The government can't list every condition and disabilities these are just General illnesses. Say yes and put there Health service number in when they ask for it and they will be able to link his medical records to there system and then they will inform the supermarkets that he is registered on the list. Or you can ring the NHS to get him added to the list. I hope that this helps you and your son

Take care of yourselves. Best wishes. Peter

Annonymouse profile image
Annonymouse in reply to petejmarshall

Hi Peter. Thank you for your reply. It feels fraudulent to choose the button "Yes, I have one of the medical conditions on the list" when he doesn't. The page is pretty black and white, you either have a condition listed or you don't.

Anthony

Pinksy profile image
Pinksy in reply to Annonymouse

Hi there yes I agree, I have a flu jab every year but would not call myself high risk, there are a lot of vulnerable people out there who’s problems are not on the list.

Christine

petejmarshall profile image
petejmarshall in reply to Annonymouse

Hi Anthony

It isn't Fraudulent by choosing the yes button because he is classed as high risk with having a flu injection every year! I Did take advise from an ex colleague of mine who is a nurse and is at the frontline in this coronavisus outbreak. I wish I could go back and help them but I can't because I am classed as high risk now with the the medical conditions that I now have

But I see that you have one of the conditions mentioned ? So why don't you register for help if your worried about it?

Take care Peter

Annonymouse profile image
Annonymouse in reply to petejmarshall

Hi Peter. I'm not sure what you mean about having one of the conditions on the list.

I've now called and asked to talk to my son's doctor and I'm waiting for a call back. I believe GPs have the discretion to add people to the database if they believe they are vulnerable. I'll talk it over with him and let you know what happens.

Anthony

Annonymouse profile image
Annonymouse in reply to Annonymouse

In case it's of use: I talked to my son's medical centre and got a call back from a nurse. She told me that my son did not fit the strict criteria of extremely vulnerable to Covid-19, but he clearly was vulnerable and she would discuss with the GP. I just heard that they have put him on the list. So talk to your GP if you think you should be registered.

Hello

We are still working on answers to

1.Who can register as vulnerable

2.How to get priority shopping delivery

Meanwhile there is useful information here:

Learning Disability England: learningdisabilityengland.o...

Local COVID-19 Mutual Aid groups – find your local community support group: covidmutualaid.org/local-gr...

And of course the Mencap website: mencap.org.uk/advice-and-su...

Hope that helps for the time being.

Margaret

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