PolkaDot Mama: Ya'll, it's been a night... - Melanoma Caregivers

Melanoma Caregivers

PolkaDot Mama

missyrand profile image
missyrandAmbassador
2 Replies

Ya'll, it's been a night of mixed feelings.

I was blessed to join the Polka Dot Mama Melanoma Research Foundation's Taste For A Cure Gala virtually tonight. There I "saw" fellow advocate Tracy Callahan polkadotmama.org/our-story/ open her home kitchen to raise money again for melanoma awareness, free screening opportunities, and a Shade Shuttle. We "hang out" at the same national meetings (Melanoma Research Foundation and Melanoma Research Alliance).

My friend/ date Michelle from Coolibar and I exchanged photos of us in our polka dot pajamas watching the gala, attire fitting for this pandemic year. Going full out, I even put on mascara and lipstick for the event. I moved my favorite picture of Wayne to our dining room table, a bottle of limited edition PRIDE 2020 pink bubbly to remember my brother Patrick as part of my siblings who mark today as the birthday of our father who died at age 45 when I was a teenager from suicide. Our cat Miss Scarlett perched the nearby on the sofa arm. My heart was full of each one of you, and all of us, and all of those we've met who have been living with melanoma these past 5 years together.

On YouTube Live I was able to hear my fellow support group member Lyn talk about her sweet sister Grace who lived fully with melanoma all the way through hospice care until her death in May of last year. I heard Lacey Adams, wife of the former Surgeon General who has been back in immunotherapy from a recurrance of melanoma this past year say putting off scans and skin checks during Covid is a bad idea, and she knows because hers were delayed and then evidenced a recurrance.

Was there crying? Of course there was crying. Well, from me, not the cat.

Was there also gratitude for Tracy, Lyn and Grace, Wayne, Susanne, Nadia, Cassie, Michelle, Living with Melanoma Alexandria, MRF, MRA, clinical trials, researchers and melanoma providers, caretakers like you, and advocates? YES. In abundance.

All these days. All your faces. All our stories.

All our hopes. All our research. All the asking and advocating and educating and fundraising.

All our losses.

All my losses.

My feet, always standing on the dividing line between then and now, before and after. Always with a propulsion forward and a heartache for another time, for more time.

This year continues to feel like a "between time". The Pandemic has perhaps helped slow my full entry into being a widow. I still fully consider myself married, but the damn medical and government forms say I am not. The invitation to our son's wedding as an individual attendee says I am not. But our wedding rings, on my left hand and around my neck, say I am.

It's been a night of feelings alright.

Thanks for listening.

Take care of yourself even as you care for others,

Missy

Written by
missyrand profile image
missyrand
Ambassador
To view profiles and participate in discussions please or .
Read more about...
2 Replies
MeAndMom profile image
MeAndMom

Missy 💗,

Thank you for posting about this event- it sounds really special!

You have been through a crazy amount and are abnormally graceful and resilient! Thank you for the mention, it means a lot. It was a tough yet also rewarding MRF Advocacy Week...

x Nadia

missyrand profile image
missyrandAmbassador in reply toMeAndMom

I'm very proud of your bravery to go advocate on the Hill, especially this year, Nadia.peace,

missy

Not what you're looking for?

You may also like...

Return to Work blessing

This has been a good week for Wayne and for me. He started back to work remotely this week and...
missyrand profile image
Ambassador

Yervoy at the halfway point

Right on time the side effects of Yervoy started for my husband 10 days ago. The research...
missyrand profile image
Ambassador

Ongoing GI side effects from Yervoy

It's been a week of extremes. Our youngest daughter got married on Sunday, and it was such a day of...
missyrand profile image
Ambassador

Nowhere to turn and very confused

Hi. First off, nice to meet everyone. This is my first post. Around this time last year, my mom...

Melanoma radiation for shoulder planned

Update: Today is a full body Pet scan again for my husband who has Stage 4a metastatic melanoma....
missyrand profile image
Ambassador

Moderation team

CassieMRF profile image
CassieMRFPartner
AdamMRF profile image
AdamMRFPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.