Hospice now engaged

[missyrand]

After several days getting to visit in spurts with most of our children, including a family brunch yesterday morning and church on Christmas Eve, the landscape shifted again..

Yesterday afternoon Nurse Autumn came to the house to begin hospice care for Wayne. We are using Capital Caring Health at Inova’a recommendation. Overnight I started some dilaudid as comfort for anxiety at Wayne’s request which is helping him sleep a bit, which was fairly non-existent the night before. His jaundice was noticeably worse yesterday and the overall swelling remains.

“Comfort care” medicine package is being delivered this afternoon to include liquid Ativan, morphine, tylenol suppositories in the event of fever and something to dry secretions , etc. personal supplies are also here now. verywellhealth.com/what-is-...

Overnight his mental status and physical strength and coordination have decreased quite a bit and I don’t think it will be safe for me to get him standing or walking alone as a result.

I have called in the siblings to help here. He has been almost constantly asleep since 4 am unless we try to rouse him, and he falls asleep mid-rouse.

The melanoma is exacting it’s final physical embrace, but love is stronger and endures forever. Wayne knows he is surrounded and carried forward in our love, of which he has always been blessed.

peace,

missy

[SGHSweethearts]

Missy,

I am sending all my love and prayers to Wayne, you and your family at this time. May God hold Wayne in his protective arms, and may he feel that comfort. Your love will live on for ever more

Michele

[kellyOd]

Missy my prayers are with you and Wayne currently. You both are warriors. ❤️

[Vflowers]

Yes, those are typical in comfort Care. They also will provide diapers, bed protectors and wipes, Nick needed those as well.

We used season's home hospice. They should offer a personal care person every other day to sponge bathe and a nurse should be coming out at least 2 visits per week, and you get access to 24 hour on call nurses as well. Use them as much as you can and don't try to take on everything yourself.

Prayers for inner strength to you. Peace and love to your entire family.

Vicki

[doulagirl]

My heart goes out to you and Wayne, I will

hold you in my prayers and wish you much strength and Love.

[MeAndMom]

Dear Missy, I’m so sad to hear this. Wishing you courage and support to turn this messed up time into as peaceful a transition as it can be. Please update when you can and thank you for sharing your process with us 🙏🏽 💔

[Bigsister3]

Dear missy

You have been a faithful and eloquent ambassador to all of us for so long. Imparting your knowledge, experience and compassion for us every time we needed you. You and Wayne have touched us all and I only wish that we had the words or wisdom to help you both through this next journey. Lean into hospice, love with all your heart and know that all of us are thinking of you and Wayne and your family.

[carlsbad317]

Praying for peace and comfort for your entire family.

[Crycleo]

This is so very hard, Missy. May God give you the strength to endure. You and your family are in our thoughts.

[HSsweetheart]

Missy, you've given the group so much, I hope we can be of some comfort during this passage. Wayne has been lucky to have you by his side, and he'll always be in your heart.

[legallygray]

Please accept my deepest sympathy as I am so saddened to learn of the death of your dear husband. Your support of him and of all of us affected by melanoma has been a beautiful treasure. I'm sure he very deeply appreciated your efforts in fighting this disease and in supporting its victims. We are very blessed to have received your valuable support in our struggles as care receivers and as caregivers. You and your family and friends are in my prayers.