An interesting side effect: Well, here... - Melanoma Caregivers

Melanoma Caregivers

An interesting side effect

strawberryjam profile image
5 Replies

Well, here’s a new one. My son has been taking mektovi / Braftovi since March . I am thrilled to say that the results have been quite good and he has had few side effects . Well there is one : his thick wavy hair has become curly. I mean really really curly! We did some research and there is one other case like this is the literature. It is definitely a new look but well worth it . Happy New Year everyone .

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strawberryjam profile image
strawberryjam
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5 Replies
kellyOd profile image
kellyOd

That is such an interesting side effect! Ryan’s hair turned white. He looks like a Dalmatian on the back of his head. These drugs are incredible but the side effects are so intriguing. So glad that’s all that he has! ❤️❤️❤️❤️

missyrand profile image
missyrandAmbassador in reply to kellyOd

Kelly, I’ve read that the white hair may be related to the stripping of the melanin due to immunotherapy

SGHSweethearts profile image
SGHSweethearts

So glad that your son is doing well on the medications. That is a crazy side effect. Happy New YearMichele

missyrand profile image
missyrandAmbassador

Wayne and his friend Susanne both hair their hair return super curly after hair loss from TIL treatments.

I’m glad you’d son is responding to this newer targeted med combo that has a lower side effect profile. Those drugs are expensive AF.

Peace to you all in 2021

Missy

HSsweetheart profile image
HSsweetheart

So glad your son is responding to the regime successfully. Blessings 💗

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