A cure for Me

[Daffodils123]

Has anyone found a cure for ME please?

[Hidden]

Unfortunately there is no cure however there are a number of steps that you can do to minimise the disruption:

1) Vit D - people with ME often have low Vit D levels and this can cause a whole rash of problems on its own such as low mood, pain and fatigue.

2) Gluten and Dairy free diet - you are what you eat and the less processed foods the better our bodies have of getting energy.

3) Meditation and Mindfulness to deal with the stress of it all and help our bodies relax. There are numerous videos on youtube to meditate to, its a case of finding what suits, Loads of sites with info on mindfulness also.Maybe take a look at some of the youtube yoga lessons.

4) PACING -- you only have so much energy, use it wisely and do not push yourself. Find your limits then don't go that far. REST and relax after doing anything from walking the dog to reading.

5) Plan your day - I find using my head much more tiring than physical exercise so I plan accordingly.

6) B Vitamins & folate and Iron levels could be effecting things, worth a checking,

7) Have fun. Life is sort, ME is a b1tch and having a bit of fun can ease a lot of the stress.

That's the best I can come up with, its as good a start as you would want. But they all need to be addressed and a commitment to being well made.

You can look into things such as nootropics to help increase brain functioning and energy levels but they are not risk free and can cause their own issues so make sure to read very well before embarking on that road.

I find that when I am flagging, some cannabis can help my energy levels. Of course it too carries its own risks with the added problems of the law in some areas. Again research that well - many can find cannabis sedating and that can be the last thing you need when fatigued.

I hope that helps. Take care.

[frogwell]

I think your best plan is to buy Dr Myhill's book 'The diagnosis and treatment of M.E. and CFS'.

She has spent her professional life helping people with M.E. This book came out in 2018, so it is right up to date. When I was really ill with M.E. in 2000, I followed the advice in a book called 'Better recovery from viral illness' which emphasised the rest and the self pacing, and this is very important. Getting better is all about self management and self discipline. When I have a relapse now, I stop everything, and move about the house very little. I have 3 rest periods of 1 hour each day, until I feel a bit better. You must do very little, increase activity slowly and make sure you can maintain the same level of activity for a week until you try to add a bit more. Keep a diary of what you have done each day and how you feel. It is very tedious, but it is the way to get better.

I was bedbound in October, but was cooking again the next May. I could walk a bit outside in August and could drive in the October. So it took a year to get 80 per cent better.

Dr Myhill's book will tell you all the supplements you need, and you can get them from her website, so you know you are getting quality.

Good luck!

[mgk93]

Has that worked for you?

[mgk93]

Thank you for replying. I got ME from epstein barr. Not sure that would help me.

Do you have a link to the girl who recovered? And could you, if you remember it, let me know here when you have tried it? Would appreciate very much!

Thank you.